Robot Mom 2.0

In order to fully understand this post please go back and read my blog Part Mom/Part Robot sort of.

My last surgery, I was told the new batteries they were placing in my SCS’s (spinal cord stimulators) would last me between five and six years. That was last June. This past Friday I found myself back in the surgery room undergoing the knife one more time to replace the batteries. Where did my five years go?

Dealing with back pain/neck pain has become part of my normal. I do not complain about, it’s just part of who I am. Maybe it’s because I don’t complain that people do not see me as someone who suffers with a chronic pain. Just to clear things up not all illnesses or health issues can be seen. Just because someone is not in a wheelchair, or using an oxygen tank, or someone is not using crutches does not mean they are fine. Many chronic illnesses or pain issues can not be seen with the naked eye.

It is much easier to say I’m fine when someone asks how I’m feeling than to actually go into what all hurts. It’s been my experience that when most people ask “How are you doing?” they are just making small talk they don’t actually want to know how your doing. The truth is most days I am fine. The SCS’s have really made it possible for me to keep a somewhat normal life. But there are days I hurt, days I can’t move, days I wish the accident never happened. On those days I wish people could really see what’s it’s like for someone to live in constant pain. Days like today.

A few months ago my generator started saying it was time to replace my batteries. I thought there had to be a mistake so I called the doctor and scheduled an appointment. When I went in I was met by the doctor and the programming team. They laid me down and ran the scans to see what was going on.

They adjusted the programs and reset the batteries and sent me on my way. That lasted three weeks before my unit started flashing replace batteries soon. I called the office back and scheduled yet another appointment. At this appointment it was confirmed that my SCS’s were in fact dying. Both batteries were going bad, just my luck. After father investigation it was determined that my spine is covered in scar tissue (countless surgeries will do that) making it hard for the electrical current to get from the leds to my spine. This was making the batteries work over time to get push the current through in order to keep the SCS’s working. That in turn drained the batteries, which is why my five to six year battery life only made it a year and four months.

So Friday I had yet another surgery. New larger batteries were placed in my units (one on the left side of my lower stomach area and one on my right side lower back area). They worked on my one on my back first then flipped me over and replaced the one in my stomach. In a few days I should be back to my normal but today I feel like I’ve been hit by a truck.

This will fix the problem short term but there is still scar tissue around my spine so another, more complicated, surgery will be needed down the road. Sooner than later. It seems to be never ending.

But even with all the downsides I am thankful. I do hate surgery but because of it I am still able to walk. The scars will fade and the pain will subside. I am thankful because with each passing year the medical community gets closer to finding a way to permanently fixing those in chronic pain. I am thankful because with my SCS’s I am no longer on pain medication. I am thankful that I am still able to be the mother and wife God planned for me to be. I am thankful because I still believe in miracles and one day I will be healed. And oh what a day that will be.

From our beautiful chaos to yours don’t be so quick to judge others. Just because you can see their illness or see what causes their pain does not mean it does not exist. The strongest people I know cry behind closed doors in pain so they don’t worry those they love.

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