Autism Isolation

As autism awareness month comes to an end, I can’t help but look at our family life. Autism is not something we think about just in the month of April, we live it every day.

The wind is a little chilly but the sun is shining bright. Our little loves were eager to get outside and enjoy all our backyard had to offer. We don’t go to public parks much especially on pretty days. They are normally to crowded for our little guy. The noise can be to much for him and trying to keep him safe while allowing the others to play freely is stressful. The stares and the whispers from the other patrons should not get to me, but it does. So our backyard is our sanctuary. Here he is safe and here our other four can run and play and I don’t have to worry.

Four are dressed in their play clothes while one is in his standard pajamas. It maybe 70 degrees outside but you will always find him in his magic long sleeved flannel pajamas. They are his safety net at home. While our other little loves run and play tag he sits on the sidewalk lining up his cars. He seldom looks up, but when he does it’s for a quick Look Momma look what I did. He loves his cars. He spends hours lining and relining them up. He is perfectly happy doing so.

Today, while we played ball with our youngest daughter, JR came over to watch. We tossed the ball back and worth to our two year old and she giggled as it bounced down the hill. Out of nowhere JR decided to engage and went after the ball. He laughed as he throw it to his dad and giggled as he tried to kick it. For the next ten minutes he played with us and it was wonderful. It was perfect. Then just as quickly as he had joined in he stopped and returned to his cars.

Autism is so isolating at times. I truly believe he wants to be part of everything, he simply can’t. We have had people tell us, Just take him out or Just make him go he will get over it? As if they think we don’t want to go out and do things. But the truth is his happiness and wellbeing are important to us. We know what he can handle and what he can’t. Days that we can make it to church as a family, or trips to the grocery store without a meltdown are considered victories in our house.

If the outside world just took a few minutes to get to know our little guy they would see how truly wonderful he is. He is the sweetest most loving little guy you could ever meet. He is the best big brother to his two year old sister and he loves to cuddle babies. At his school he is known as the hugger because as everyone comes through the doors he is there to welcome them with one of his giant bear hugs. He is not less because of autism he is so much more.

As a mom I love days where we have moments like today. To hear him laugh and to see him run and interact with his siblings is something I will never take for granted. Today was a good day and for that I am truly thankful.

JRs superpower is autism, what’s yours?

Side note:

Thanks to everyone who has bought my book Beautiful Chaos Our Story about Foster Care, Adoption, Faith and Love. If you haven’t done so yet you can go over to the new website at http://www.beautifulchaosmomma.com and pick up a copy. My prayer is that our story inspires others to become foster/ foster to adopt parents.

Beautiful Chaos is now AVAILABLE!!!

Hello everyone,

For those of you who have been following the release of my first book Beautiful Chaos Our Story about Foster Care, Adoption, Faith and Love, the wait is over!! It is now available.

I want to thank all of you who have supported this project in some way. For those that helped me fund the project THANK YOU!! For those that have prayed for the book and for me Thank you!! For those that gave me the encouragement to get it started and then to get it completed Thank you!! I am truly humbled by what is taking place.

Thank you to my beautiful family for allowing me to share a glimpse of our life with the world. Thank you to my wonderful husband who not only lives this crazy life with me but also has had to listen to me over the last few months give him play by play details as our story became a book reality. Mostly I want to thank God for allowing us to be a small part in His beautiful masterpiece. He has allowed us to be part of some many lives on this foster care adventure. He has been my comfort when a child is placed back with a birth parent or relative, He has been my guide when I did not know what to do, He has been my protector when situations have become unsafe, but above all He has been my friend that has walked with me every step of the way. To You oh Lord, be ALL the glory.

This book is for you!

If you have ever thought about becoming a foster parent or have ever wondered what it takes to foster a child, if you have ever thought about adopting, or if you have ever questioned your plan in Gods story I encourage you to read our story. My hope is that it inspires at least one person/one family to open their heart to the idea of becoming foster parents. If one child gains a safe place to lay his or her head at night then everything struggle and every worry in making this book a reality was worth it. It’s all about the kids. Always

You can find the book at the following websites:

WestBowPress.com

Barnes & Noble

Amazon

Check it out and let me know what you think

From our beautiful chaos to yours, may you find a way to make your mark In this great big world. One act of kindness at a time

Today was a Good Day

What a great day, just what we needed. Today was well overdue so I am thankful.  The last few months have been brutal.  This was the first weekend in over six weeks that everyone in the house was feeling well.  The month of February alone our little loves had four double ear infections, three cases of the stomach bug, two upper respiratory infections, four fevers, one cutting teeth, and then my husband had the “man cold”.  We all know that last one was the hardest on all of us, right ladies?  I don’t know how we didn’t catch the flu, but praise God it spared us.

On top of all of that we received test results back from the geneticist for Alex.  It has been confirmed he has Alcohol Related Neurodevelopmental Disorder (ARND).  Eli with his chronic stomach issues was given the diagnosis of Underdeveloped Bowel Syndrome. And I was told I would have to have back surgery again.  When it rains it pours.

pexels-photo.jpg

Today it was time to get out of the house and forget about all the bad stuff and just have fun.

IMG_6121[1]

 

I stumbled across a local autism group called Autism Site Knoxville (ASK).  They were hosting their fourth annual Day at the aquarium today.  When I saw the invite last week I thought it would be the perfect way for us to spend a Saturday morning. And how could we pass up the low cost of only 10 dollars per person?  As the day came closer however all the normal mom worries started coming to the surface.  We had not even made it to church in two months how in the world would the kids do at the aquarium? Would it be to crowed for JR?  How would he do with the noise? What is he had a meltdown? How would my husband and I handle it with all the other little loves in tow?  This would be the first big outing that we had done in months and we would be doing it without the help of our older children or grandparents.  Not going to lie I was a little overwhelmed.  But when your four hours away from family you got to go out on your own at some point. With our family its just a much larger challenge than most.

So this morning we loaded four very excited and two very sleepy children into our 12 passenger van at the wee hour of 6am so we could drive a little over two hours to be there when the aquarium at 8:00.  The event ran from 730 to 1030 but of course we were free to stay longer.  I am so glad we went.  The staff was super sweet and handed out goldfish, gummies, and water to the kids as we came in.  Being that early in the morning the kids were able to walk around and enjoy all the different tanks without being ran over by other people.

IMG_6119[1]

The event organizers had different sensory stations set up throughout the aquarium so if JR or even our other kids wanted to take a break they could.  The lights were softened and the background music was turned off. Everyone there got it.  Everyone there was living in the world of autism.  There were no nasty remarks about behaviors, or looks when he made his unique noises, and no one stared at us.  Okay some people did look at us but it was not because of JR it was because of the size of our crew lol.  He rode in his stroller for a while then walked with me for a while. He pointed out the scary sharks and the huge sea turtles.  And he made it known he did not like the seahorses, after all real horses don’t look like that.

IMG_0004[1]

He made friends with other people waiting outside and made sure to tell all the moms we passed just how cute their babies were.  And no one cared that he was talking to them or touching them.  Most told him thank you or even told him he was a cutie as well, to which he would just laugh and smile.  He really enjoyed himself. Our other kids had a great time as well.  We don’t get to do things like this often unless we have our backup team to help us in case he has a major meltdown or takes off running. He has no safety concerns at all.  So thank you ASK for making today possible.  Thank you for hosting events like this so that children and adults with autism can go and do everyday things.  Thank you for opening it up to all of our children so that we could attend as a family. Thank you for a day we will not soon forget. Thank you for giving us a day were all of our kids could just be kids. Thank you for helping this mom see her son really enjoy himself today.  Today was a good day and we so needed a good day.

IMG_6123[1]

Looking at His future

We had our mid-year parent teacher conference for Wild Man last week. I knew by the marks on his papers things were not going great in the traditional classroom. As a mother of a child who has autism, these meetings are dreaded. I know he is not on the same level as the other children his age, I know that he is falling behind, and that bothers me.

As I chatted with his speech therapist and his autism teacher before going into the meeting I addressed my concerns. They both shared stories about my little guy that brought smiles to their faces and told me it was natural to be concerned but he was really doing great. When his teacher was ready we walked in together and sat down. His teacher went over his test scores which were extremely low. She explained that he does not do well with timed test which was part of the problem but the test are mandatory so she had to give them to him. She then explained that even though it does not show up on the written test my Wild Man has grown leaps and bounds in class. He is starting to use full sentences, he is holding a pencil, he is engaging with other students, he is setting in his seat for at least 10 minutes at a time, he is making friends, and he is making eye contact here and there. All wonderful new skills for my son but all things that standard testing do not look at. I was excited to hear he was doing so well, relieved in many ways.

But I still questioned things like his spelling words, he has spelled one correct out of the last sixty. Only one. Math is a struggle. And homework when he does have it is a nightmare. I don’t want him passed just to be passed. I also don’t want him overlooked. He falls in the middle. He is doing to well to be in the autism room full time but he is not up to level with the regular class. He is somewhere in between. I am thankful he has an aide to help him through the day.

As we discussed plans for the remainder of the year one of his therapists said they wanted to help give him his best possible life. His best possible life. That phrase hit me hard.

As a mom I have thought about all of my kids futures. I see them all doing things like going off to college, getting jobs, moving out, getting married and starting a family. With Wild Man I want these things as well but I also know they may not be a reality. He may never go off to college or hold a traditional 40 hour a week job. He may be with us for our life time. If something happens to myself and my husband who will care for him? There are so many questions and concerns I have about his future, I worry but I can’t let it consume me.

He is in good hands right now at his school. They understand my concerns and they are working on goals they feel he can reach. They genuinely care about him and his education. I could not ask for a better staff of teachers and therapists to be working with him. he has been blessed with wonderful teachers since his preschool days. We will take this one day at a time. I have a life time to worry about his future, for now I will enjoy my silly, loving, crazy little boy. We will get through this together just as I promised him the first time I held him. After all autism is not who he is, autism is just a small part of what makes him my son. My wonderfully, sweet, amazing, brilliant son. I am so lucky to be his momma.

Education and Autism

Let me start off by saying fair/equal education should be available for ALL children. It’s that simple. No child (or their parent) should have to fight for an education that many take for granted. However, if you have a child with special needs I will warn you it’s a fight. Every. Single. Day.

I will say that where we live now seems to have a better system in place then where we once lived. But it’s still a struggle. All I want, all any decent parent wants, is for their son or daughter to succeed. That starts at home and at school.

My wild man is almost seven. He attends a public school. In order for his needs to be met we have an IEP in place (some states call it a 504) Basically it is a plan that lays out my sons strengths and weaknesses. His plan gives him scheduled speech times and OT times durning school. His plan also calls for an aid to help get him on task throughout the day. Sounds perfect right? I thought so at first.

Last year he was in an autism/special needs classroom. The class size was eight children and eight aids plus the teacher. There was a calming room, sensory toys and tools, and even an OT room. He’s teacher taught him to hold a pencil and he finally was able to write his name. He was excited to go to school. He loved his class and peers. It was perfect and he was doing amazing. To amazing according to the school. At the end of the year it was agreed (I went along with it thinking they knew what they were talking about) that he would be placed in a normal classroom for his first grade year.

Normal, an odd word in the land of autism. Nothing about our lives or wild man is normal. Why oh why did I think this would work. The first few weeks went okay. I think he was excited to be back at school. But as the days turned to weeks and weeks turned to months he slowly started hating going to school. One of the things that aggregate him (okay me) is that he is now expected to do spelling test. I know, I know all kids have to take spelling test. I get that. But he is still working on forming letters, how is he suppose to spell a word if he does not know all the letters to the word? In the last six weeks he has managed to get one word correct. One. One out of sixty. The word was frog. When he showed me his paper he beamed with pride. Look momma I did good. Frog ribbit ribbit. The nine red X’s did not phase him. But they crushed me. Another his personal aid has four other students. How is she suppose to care for my son’s needs when she has four other kids? Thank you budget cuts. He has sensory issues so he eats only a few foods. Two of those being peanut butter and Stage two peas, yes the baby food peas. Well he can’t take peanut butter because someone in the other class has a peanut allergy. As far as the peas, a boy in his class called him a baby for eating baby food so those are now out as well.

He is lost and I don’t know what to do. Part of me was so excited to hear he was doing so well at the end of last year, but part of me worried that he would get over looked and left behind in a regular classroom. My fear as become his reality. He hates going to school now. And even though he can’t articulate why he hates it I have a feeling I know why.

So, I started looking for a new school. And I thought I had found one. It was a private school so the classroom sizes were small and they worked on an individual plan based program virus the whole class learning the same thing. It seemed to be the perfect school, until I was told how much it would cost. One year over 12,000 dollars. Wow. We are a one income family currently with six little ones in the house. There is no way we can afford that kind of tuition or justify it. That’s when it hit me, we need public schools that specialize in special needs. Why should it cost so much more for them to receive a descent education?

It’s time for better education for my son and all the other children who have autism, or Down syndrome, or any special need. Why should they get left behind or overlooked? Why should their disability be a magnet for educators or providers to charge more for their services? Have you looked at the cost for some of the sensory products or equipment for those with special needs? It’s insane. What’s a mom to do?

We fight. Day in day out. We become the face the principal and staff at the school dread to see. We make sure our concerns are being heard and that they are being met. We become moms like Maya DiMeo off of Speechless. We go in demanding and we don’t back down. Ooooh good you’re here...again

The fact is I would love for my son to be what society defines as normal. I think all special needs parents feel that from time to time. It’s natural for us to want our children to fit in. But the reality is he is not. He was made to stand out. No matter how hard he tries or how much I pray he will never be “normal” and that’s ok. God made him in His image so my son is exactly how he is suppose to be. He may learn different,act different, and talk different but different does not make his less. As his mom it is my job to make sure everyone sees that.

I will fight for you, for your education, for your independence, and for you to be excepted. Mostly I will fight so others can see you the way I see you. My brilliant, creative, funny and loving son. Don’t worry wild man, momma’s got this!

The Extra Hour of Sleep Myth

Daylight savings time.  The time many adults get excited about gaining back that hour of sleep.  I too once cherished that extra hour, then I had kids and the extra hour of sleep became nothing more than a myth. 


My kiddos never sleep in.  Most Saturday and Sunday mornings you can find us up and at it before 5am.  (How we manage to still run late for church I will never figure out) So this whole Daylight savings time is a struggle every time it rolls around.  It does not matter if we are “falling back” or “springing forward” time change on my little loves is hard….so so hard.


Its worse on Wild Man.  With his sensory issues and autism any change is huge for him.  In order for us to gain this one hour we will spend countless hours(days maybe weeks) in complete turmoil trying to readjust him to the new normal outside.  It’s exhausting. 

This morning he was up around 3.  He climbed in my bed but could not go back to sleep. He tossed and turned, he talked and sang. I knew there was no way he was going back to sleep. I knew if he stayed in my room much longer he would wake up both his dad and baby sister so I got up and we went back to his room.  For the next two hours he played with his Legos and asked if it was time to go downstairs.  Around 5 our two four year olds heard us up and wanted to join the morning party.  


By 5:15 we were downstairs watching Tangled for the 1,573,693,302 time in Wild Mans lifetime. (We have went through 10 dvds of this movie. Safe to say it’s his favorite) 

By 530 the boys were eating breakfast.  By 6 Diva was up and the boys were having their morning snacks.  I was working on my second cup of coffee.   My husband and baby girl are still sound asleep at 7.  

I am sure that when daylight savings time was invented it was necessary. But I know I can’t be the only mom who suffers from the time change.  Okay suffers is a strong word but I have been up since 3 so bear with me. The next few days are going to be tough, but we will get through them with coffee,chips and Disney movies. And who knows we may even fit in a short nap later today.  

From our beautiful chaos to yours may that extra hour of sleep do you well this morning. For those of you with kids well maybe we will enjoy it next time 😂

Trick or Treating with Autism 


Autism can make the simplest things…less simple. And trick or treating is no exception.  Last year we were still new to the area so we let the kids dress up and run around the backyard. They took turns ringing our own doorbell as I gave them candy. It was simple it was safe and most importantly Wild Man was able to just be himself.  This year however, the kids wanted to venture out and gather candy like we had back in my hometown before we moved.  I knew this would be a challenge even with help from my husband.

The last few days leading up to tonight’s outing we went over The trick or treating rules.  Basic things like: staying with mom and dad, no running off, saying please and thank you, and being respectful to all those around us.  Down here they do not trick or treat like back home.  There hundreds of candy hungry kids flood the subdivisions in search of the perfect sweets.  Here it’s not about going house to house but more of the local churches doing what is called trunk or treat. We decided to go to a church close to our home so the kids could make their big candy score.  

The trunk or treat was suppose to be from 6 to 8.  The church had hot dogs and other food for people to eat and they had games set up where kids could play and earn candy.  Which for most kids would be fine and I’m sure everyone that attended had a fantastic time…everyone except our Wild Man.   We arrived right around 6 (it was still daylight so Wild Man was okay with being outside) We signed the kids in and were told we could get something to eat.  If you have ever been trick or treat with young ones then you know the last thing on their little minds was eating actual food they want candy and nothing but candy.  We passed the food station and walked through the game stations over to where the trunk or treat was suppose to take place. The problem….they were not ready for the kids.  We were told we could play some games while they set up.  Wild man was getting anxious but we tried to play a few games.  He didn’t understand why he could not just get the candy from the bowls. Why me play game momma? Why????? We tried for about 20 minutes before he got extremely upset.  We walked back over to where the trunk or treat was to take place. It was still not ready.  I looked at my husband while trying to keep ahold of Wild mans hand and made the call to head back home.  Our other little loves were not thrilled we were leaving. Having a sibling on the spectrum is difficult on them sometimes.  They know he has limits but their kids and sometimes they just want to be able to do what other kids do.  As we walked back home we saw a few of our neighbors lights on. I look at my husband and he knew what I was thinking and he shrugged sure why not?  

In our large subdivision we walked along with our five little loves.  Out of all the houses in our subdivision we found four that were passing out candy. Four.  But four was enough.  At the first house Wild Man asked the lady’s name and then told her he was moving in with her. She was sweet and laughed it off.  At the second house they passed out suckers and Whopper candy. Wild man loves both so he was okay there. Third house he tried to take more than a few pieces and when the gentleman said Oh only a few big guy, he started screaming and tried to step on the mans foot. By the fourth house he was done and when they opened the door he ran in. (When he’s done he’s done. He saw their TV on and wanted to watch) The gentleman at the door caught him and was very kind about the situation.  As we went walked down the neighbors front porch steps I said it was time to go home.  That’s when Elmo and Diva started fussing. It’s not fair.  We hardly have any candy.  Why do we always have to stop when he gets upset? As we walked up our driveway they both stomped as loud as their little feet possibly could.  

I am use to things not working out as we plan.  So as they fussed I went to the kitchen and pulled out Plan B aka backup candy.  I had the kids open up their bags and I filled them with their favorite sweets. Smiles finally covered their faces as they settled in with their candy to watch a Halloween special before bed. They were happy and Wild Man was safe and comfort in his own home so he was happy. I hate to say it but as an autism mom I always have a backup plan. You have to have a backup plan.

It’s not fair, I get it. It’s hard on them, him and us. All I want is a normal life for all my kiddos. Some days we get through without any major upsets other days it’s meldown after meltdown.  All we can do is take it day by day (and always have backup candy just in case we need it) Our normal is different from most. And I’m okay with that. 

Even though we did not get to go to many houses or play all the church games we did get out as a family. We did manage to get out of the house for a little while and he did have fun. And he was able to wear his mask for awhile. (Huge win) We could set and dwell over all the things that went wrong or we can celebrate the small victories.  We will celebrate and eat candy I bought. 

The X Factor: School Life for Our Autistic Son 


I attended my first IEP meeting for this school year for wild man a few weeks ago.  As a mom I want the best for my kids. I want them to have a great education and be able to succeed. As a mom of an autistic child I want these things and so much more.

 The meeting went well. His new teacher, OT, speech director, principal and his teacher from last year all love him.  Which makes me feel like we made the right decision on the School.  We went over his daily schedule and how we could make it better for him.  This year he will have his major subjects in a regular classroom while his afternoons will be spent in the classroom equipment for special needs (this is the classroom which make us choose the school in the first place). Change is hard for him but I want what’s best for him.  

The meeting was filled with comments like “he is doing so great” “he is working so hard” and “he has come a long way”. All of which made me smile because he is doing great and working hard. And he has come a long way, a very long way.  It’s in these moments that I get lost and almost forgot he is autistic.  Everyone bragging on him and telling funny stories about things he has done.  I love seeing other people’s faces when they talk about him.  They just light up he has that effect on people once they take time to get to know him. 

But then there comes the reality.  Take this work page for example.  He scored a 3 out of 10.  I know placing him in the regular classroom is supposed to help him build social skills and help him become more independent.  But he is so lost when it comes to the actual school work.  I don’t want him to be overlooked or just passed through because of his disabilities. I want him to have a chance to learn and to grow just like any mother would.  I know many of you are thinking “it’s just one paper or he is just in 1st grade” but that’s my point. This is just the beginning. What happens now and how he is treated will affect the way things go from here on out. He does not bring many graded papers home but when he does most notes are “he tried hard” At what point will he become completely lost and what nothing to do with School? Will he always be this happy go lucky boy or will the struggles become to much for him the bear?  I worry because it’s my job to make sure he receives the best possible education he can receive. I worry that the other kids will start calling him names or talking about him because he does not get the answers right.  I worry constantly about how his peers receive him.  

But then my son does the most wonderful thing.  As I look at all the X’s on his papers and the comments my son, my beautiful intelligent son points at the papers and says “look momma I got this one right” and smiles great big.  Even in a world full of negativity and large red and green X’s my son only sees the good, he only sees the beauty. As his mom I worry about him in this crazy world we live in.  People are so cruel to each other and I am scared that the things that make him unique in Gods eyes will get him teased or even hurt in this world.  But God has given my son a unique way of looking at things. He only sees the good in people and in things.  He does not notice those that stare at him or say hurtful things about him. I am truly thankful for that.  As his mom I need to try and see the world the way he sees it.  I need to find the good.

So yes we celebrate the three right answers, because a year or two ago none of this would have even been possible. We celebrate that he can now write his name and that his teacher said he is now sitting at his desk up to three minutes at a time. (This is huge for him) We celebrate that he has even sat at the dinner table with us a few times this month and we were able to have dinner as a family(and this is huge for him). We celebrate the red and green X’s because they show us progress. He is moving forward in all areas of his life.  We celebrate because God has made this prefect little guy ours and we are the ones that get to watch him grow and succeed at life.   

We celebrate because we are blessed.  

Thank you wild man for opening my eyes to more than just the negative.  Thank you for helping me see there is beauty in everything, even in X’s. 

“Get Me to the House…I have to poo.” A day trip with my autistic son

via Daily Prompt: Carousel

Last week my beautiful mom had knee replacement surgery.  I was unable to be with her the day of her surgery and felt horrible about it.  One of the downsides to living in two different states. *sigh*  After she made it to her recovery room I received a phone call from her (she was still heavily medicated thanks to the anesthesia and pain medicine), it was full of giggles and phrases like “I know your a daddy’s girl but you will always be my baby girl ” and “Love you’s”. She was just letting me know that she was still alive and well and that the surgery was a complete success.  Guess even medicated she knew I needed to hear her voice telling me she was okay.   Thanks momma.  But I still needed to see her with my own eyes to “make sure” she really was okay.  So I told my husband I was headed home for a quick visit last Saturday.

As I planned my day trip my six year old asked if he could ride along.  Traveling is rough on him but there was no way I was telling him he could not go. His sad puppy dog looking eyes get me every time.  

Traveling with kids never goes as planned. Traveling with a son who is autistic always comes with its adventures.  This trip was no exception.

Our plan was to get up early and be on the road by 6am. We would fill the day with visits. First we would stop and see a friend who had also had surgery, hers was on her shoulder, next we would go see mom, swing by a baby shower and drop a gift off, seeing mom would be in no shape to go to said shower, and lastly have dinner with my best friend and her family before heading home.  Seemed like a realistic day.  The night before I packed his two backpacks: one with extra clothes for him just in case we needed them and one with his treasures, this included two tablets, his dads backup phone,cars, puzzle pieces, a notebook, a pen, his hat, sunglasses, and some toy pirate coins. I also packed him a snack bag that contained his favorite chips, popcorn, and juices.  We would be gone for less than a day but we were packed for a week long vacation. We were all set for the next day. 

Well we were until my son who never sleeps past 5:30 slept till 7:30.  Now I could have just set out at 6 like I planned but then my husband would have had to deal with the tornado that would have been our son when he realized mom went without him.  And seeing that my husband was keeping all the kiddos that would have made for a very bad day.   So I waited until he woke up.  We were on the road by 8:15.  Running a little behind my schedule but still we could manage to get everything in. 

That is until we hit the tunnels.  We have to travel through two tunnels in order for us to get back to WV.  I never thought much of the tunnels until wild man came into our lives.  The lighting and the noise that comes with going through a tunnel can set his system into sensory overload. I handed him his sunglasses, they help him with the glare from the lights, and told him to lay his head down.  It worked the first time. But the second tunnel was a different story.  When we arrived at the second tunnel he was in the middle of playing a racecar game on his tablet.  He did not hear me, or he decided not to listen me, when I told him it was time to put on his sunglasses.  The moment we were inside he started screaming. The lights were to much and the motion of us passing them made his stomach upset.  By the time we made it through he was sick and throwing his head against the window to made the lights stop moving.  I got the car pulled over and climbed in the backseat with him before he got sick. We sat until he was calm enough to get out and walk.  Lucky for us you can find a Walmart just about anywhere. He loves Walmart. So  I get back into the driver seat and we make our way down the road a few miles to his favorite store. There I parked the car and took my little guy in so he could walk around without cars flying past us.  The Walmart detour took a little over and hour and cost me over hundred dollars (hey he needed a few things for school why not get them while we were there?) 

As we walked the aisles of Walmart my sweet boy made many friends along the way.  He introduced himself to everyone we walked by or asked, “Hey hey what’s you name?” or “Hey hey I like you let’s be friends.”  Many of the passerby offered up their names with a warm smile, some even gave him Hi-fives.  But there is also the other side that shake their heads, or look annoyed just by his presence, and theirs always at least one person who tells me to control my son that he is a) being to loud, b) that he needs to respect people’s person space, c) or that he is being disruptive and I need to make him stop or my favorite d) I would never allow my child to behave that way.   It never fails. I am so thankful my son does not process what others think about him the way I do.  He is always just so happy in the moment. 

After he was feeling better and I knew he would not vomit all over my husbands car we are back in the car and head towards our destination. 
We were about an hour out when I called my mom to see if she was still at the hospital or if she was discharged and home.  She informed me she was still in the hospital but they were getting ready to discharge her. Have you ever waited to be discharged from a hospital?? Let’s just say What should have been simple turned into an all day ordeal.  By the time my sweet momma actually made it home it was after 3pm.  Visiting my friend who had shoulder surgery was not going to happen and as for the baby shower I missed it completely, we did drop the gifts off at the mommy-to-be’s mothers house so at least she got them.  

Before we knew it, it was time to go home. Wild man was not ready to go home however. He had a meltdown.  I tried to calm him down with a frosty but even that didn’t work.  There was no way he would be able to stay seated in an overly crowded restaurant if I meet up with my friend and her family for dinner.  So I text her and told her I was sorry we would not be making it. 

We started to trip home and he settled in to a video game, this time Minecraft, he was still upset but at least he was in his car seat and he could not reach me to kick me or hit me.  All was going well until we reached the tunnels again. This time a truck had broke down inside one of them and traffics was crawling through the only open lane.  It scared him so bad to have to sit inside the tunnel as we moved only inches over the next 40 minutes. Finally we could see the end and we were out. 

After that we had to stop and get out of the car.  Three straight hours in his seat had taken its toll on him.  When we stopped he proudly announced he had to pee.  I found a gas station and we went in so he could do just that.  We loaded back in the car with a fresh juice, bag of popcorn and a fully charged tablet. We should be able to make it home without stopping again.  

Ten miles down the road I hear, “Momma Are we there yet? I need to poop.” Words I did not want to hear.  See my sweet boy has this thing, he only poops at home.  He only poops at home in our downstairs bathroom. Nowhere else. Ever.   He will hold it for days if he has to, but the smell coming up front told me I didn’t have days or even hours.  I told him I could stop at rest area or another gas station but it was a no go.  He screamed and cried for the next 45 minutes and I was helpless.  There was nothing I could do but get us home as fast as I could. I may have driven a little over the speed limit. Maybe just a little. I was never so happy to see my driveway.  I pulled in the garage as my husband opened up the door to the house. I ran around the car and unlocked his safety belt and off he went.  I yelled over to my husband Watch out he has to go! as wild man ran passed him.  He made it, barely but he made it.  

Many would not consider this trip a success, but I do. True we didn’t get everything done or see everyone like I planned. But that’s okay.  I think sometimes God placed wild man with me to remove some of my OCD qualities.  With him we just have to roll with it.  Autism is hard, but we are learning more and more everyday.  There are days I wish I could get off this carousel ride of emotions and just go back to a time before we knew he was autistic. But that’s not possible. So I am learning as I go. I am learning there are those who will go out of their way to be nice to a six year old they don’t even know just to make his day.  I’m learning that there are no such thing as schedules or preplanned evenings.  I am learning some people will accept him and others will always judge him.  I am learning to be a best person because of him.   He loves freely and judges not. His life is simple. And I am blessed to get a front row seat.   In his darkest parts of the day in the middle of a meltdown or while he screaming because the house bathroom is so far away, I will be there to love him and get him through it. I will do whatever it takes to make his life better for he has surely blessed mine. 

Create a website or blog at WordPress.com

Up ↑