We Had a Breakthrough…He tried Pizza!!

When wild man was two, he ate like any normal two year old.  We could go out and eat just about anywhere. By the age of two and a half he had stopped eating.  Back then we knew something was different.  He did not talk like other two year-old’s, he did not make eye contact, he would sit and line cars up for hours, he did not play with others he preferred to be by himself. He is destructive. He can tear through a clean room faster than anyone I know leaving a trail of broken toys and books in his path.  Back then we knew but didn’t want to know.  We contributed his delays to his unique begin and brought in early intervention workers to help get him caught up.  By the age of three we had a diagnosis, he was autistic.

My older two children were what I would call picky eaters. But even they would eat chicken, pizza, and pastas. I have had many people tell me, “If he were mine he would eat what I fix or not eat at all” or “Why don’t you  just make him eat.”  Autism does not work that way.  Wild mans diet consists of Stage two Gerber peas, orange creme yogurt,  KFC mash potatoes ,bread sticks, Cheerios, Trix, Pringles honey stix’s, fruit snacks, french fries,peanut butter and chips Dill pickle flavored or cheese flavored.  That’s it.  He will drink water, apple juice, Kool Aid, and milk.  He just turned six.  And even though his food choices are limited he is a happy healthy little boy.

I packed his lunch everyday this school year.  He ate with the regular kindergarten class and it did not take long for one of the little boys to make fun of him eating stage two peas.  Those are for babies are YOU a baby?  He came home and said, No eat peas momma I no baby.  I called the school to see what happened and was told the story.  The teacher talked with the little boy but the damage was already done.  And with one child in the class allergic to peanuts wild man’s limited list of foods was now down by two.  But we managed and made it through the school year.

For the last few days, he has been on this “Let me made food” kick.  He has help cut up vegetables, buttered bread, and tried his hand at making smoothies.  He is becoming a fine little chief.  If only he would eat what he made.   Well yesterday he decided he wanted pizza.  We turned on the over and got all the ingredients ready.  I keep it simple, pepperoni and cheese. He was so excited.  He arranged the pepperoni in straight lines and made sure there was enough cheese to cover all the sauce and crust.  He watched it bake while he reminded me it was the longest 15 minutes of his life.   When it was done I removed it from the oven so it could cool.  That’s when it happened.

 

      HE ASKED FOR A PIECE OF PIZZA!!!!

Pizza, Food, Italian, Cheese

At first I thought I misunderstood him.   I looked at him and asked, Did you say you want  a piece of pizza?  Yes momma,  I want that one (pointing to the square piece perfectly in the middle)  Alright then, let me get it for you.  Thanks momma, thanks alot. He was all smiles.  My husband and I stared at each other.  I quickly got everyone’s plates together and told my husband to get a plate for wild man.  If he asked for that piece of pizza he was going to get it.  My husband placed the plate in front of wild man at the table.  He looked at it and then sniffed it.  Again he smiled.  He looked over at me and asked, Me eat now momma?  Yes baby you can eat now.  So he touched it, he moved the pepperoni around, he pulled the cheese off, and then he took a bite.  And he swallowed.  Momma me not like the bread.  He said.  That’s okay buddy you don’t have to eat the crust.  Okay momma thanks.  So he sat at the table, picking at the pepperoni and at the cheese.  He licked the sauce off the crust and he ate dinner with us.  For the first time in over four years all of my kids were at the table eating the same thing….pizza.  And it was wonderful.   We have had pizza many nights for dinner over the last six years, why he decided last night he would eat it I will never understand, but I am ever so grateful he did.

To most this might not be a big deal.  It may sound silly.  To us this is huge.  For him to be able to try a new food without throwing up is a major accomplishment.  For him to sit at the table with us and staying with us for the full dinner is major.  The whole night was a miracle. For in that twenty minutes we were just a normal family.

 

Nothing about autism is normal.  Some days are just plain hard, but nights like last night give us hope.  Doctors told us he would not talk, yet at five he said his first sentence.  We were told he might not walk or run do to injuries that took place before he found his was into our home, but he not only runs he climbs and jumps.  When man says you can’t Our God says YES YOU CAN!! It’s all in His precious timing.

Wild man may never eat pizza again, or it could become one of his stable foods, only time will time. It may take another four years before he tries something new.  And that’s okay also.  For now we will celebrate the small victories because life is about the small victories.

 

From our beautiful chaos to yours celebrate in all things big and small.

Summer Vacation

via Daily Prompt: Survive

 

The school year has come to an end.  We survived our first year in our new state and in our new schools.  While most parents get excited that the longer days of summer are quickly approaching I for one almost dread it.  Summer means all the children will be home 24/7 and this year, this summer will be the first summer I will be without the help of my older two kids.  Lord give me guidance for I am in uncharted territory.

Let me start off by saying, my kids are my world, anyone that knows me knows this to be true.  However I have one child with RAD and ADHD and one with autism and three under the age of four.  Sometimes, most of the time, their is no peace in the house if they are all together.

We have reached the point where our almost seven year old (RAD) notices that our six year old (autistic) does not have to do the same things she does and does not have the same consequences she does.  This has become a daily problem for her.  And to be honest how do you explain to a seven year old that her brother is treated different because of his disability?  All she shes is that he does not get in trouble for things like she does.  We try our best to be fair but we are human so I am sure we have messed up from time to time.  We have been out of school for four days now and the time out chair is already getting its workout in.  And don’t get me started on her thoughts about the other three little ones.  I know its not her, I know its all the pain from her birth parents, I know she takes it out on me because in her eyes I replaced her mom so therefore I am as bad as she is, but man some days are hard.

Last summer, I was fortunate to have our oldest daughter with us.  She came down after her junior semester was over and helped us get settled in to the new house.  It was nice having an extra set of hands during the day.  She does so well with all of them, especially with our wild man.  The two of them can spend hours together lining up his cars or playing with his Lego’s.  She is his favorite thing in the whole wide world.  He feels safe to just be himself around her.   With her here I was able to take care of our other little ones. Of course there were days that meltdowns happened, but having someone else here to help buffer was a blessing.  I already miss her this summer.

My husband helps when he can, however he is the one that provides for us.  He works a 40 hour a week job that normally turns into closer to 50 or 60 a week.  By the time he gets in he is exhausted.  He comes home most nights around 7pm sometimes later but rarely at the 5 o’clock hour.  He helps with baths and helps get them to bed. He is looking forward to our family vacation to the beach in a few weeks.  I wish I could say the same.

Vacation to most means relaxation, fun, sleeping in, dinning out at new places, and taking a moment for yourself.  Vacationing for me makes me anxious. The packing and repacking.  The food list.  The activities to take for the car ride, the 7 hour car ride. I know wild man’s sleep pattern will be off because he will not be in his own bed.  It will be days before he gets a good night sleep if it happens at all.  I will spend the first few hours at the house we rented child proofing and making sure he can’t hurt himself and making sure our three little ones can’t get into anything either.  I will check and recheck the locks on the doors to makes sure he can’t get out.  I will make sure the fence around the yard does not have any holes he can dig under.  I will stock up on stage two Gerber peas, because those are his comfort food and we will need his comfort food when he realizes we are spending the night in the strange house.  I will end up in the same room with him and baby girl I’m sure because when they wake up in the middle of the night they will not know where they are and instead of them trying to find me in the strange to them house it will just be easier for me to sleep in the extra twin bed.  Correction I will not sleep that week, for I am sure he will not sleep.  If he does mange sleep we will be up at his normal 4AM, autism does not sleep in even on vacation. We will not go out to new restaurants for dinner or lunch because the noise will be much to loud for him to handle.  And as for a moment to myself, well I have five little ones I can’t even go to the bathroom by myself.  I am thankful our oldest son is going with us.  The kids(and I) miss him not living here so it will be nice to have him with us for a week.

As for Diva she will be in heaven for her daddy and grandparents will be with us.  I know that the first day or so will be fine for she will be on her best behavior, like she always does around them.  I know though her behaviors will surface.  They always do.  Unless you live with RAD everyday you can’t understand the struggle’s we face daily.  The mood swings, the screaming, the always fighting are real and painful.  What if I’m not enough for them by myself this summer?  What if they need more of me than I can be? I really miss home in times like this.  My parents, friends, and in-laws.  Here its just me.  I hope we can survive  summer vacation.  GEDSC DIGITAL CAMERA

My prayer is that God will show me the way to make the most of this summer.  That He will show me how to be the best mom to each of my kids.  They all have pasts, they all of troubles and yet God chose me to be their momma.  Maybe He sees something in me that I don’t see.  Most days I think I’m an okay mom.  Some days however I know I’m not so great.  I don’t want to be perfect just better.

Earlier today I read a blog “Eighteen summers: It’s all we get, so this is my promise to you” over at simpleasthatblog.com  And it got me thinking.  With my oldest daughter I had 21 full summers, with my oldest son 17.  Time does go by so quickly.  I’m not going to lie and say that I am excited now to go on vacation since I read this blog, but I will say it opened my eyes.  I do want to see baby girl’s eyes when she sees the ocean for the first time.  I want to watch the boys run freely on the beach with the sand between their toes.  I want to hear the giggles and laughter coming from their rooms as my husband tucks them into bed each night.  I want to steal a moment under the stars with my head on his shoulder and breathe in all that God as blessed us with.  We will survive we always do, sometimes it just takes a little more work and patience to get to the end.

From our beautiful chaos to yours.  Summer can be hot, long and hard.  Not everyday will be sunshine.  God washes us with the rain from the storms.

The Grocery store experience 

We all eat so therefore we must go to the grocery store. As a mother of five little ones I try my best to go when most of my little loves are at school. It’s both easier and cheaper on me.  However some days things don’t workout like I plan and I end up taking a few with me.  I’m sure we are entertaining for our fellow shoppers to watch. Which leads me to this blog.

A few days ago my youngest and I made a quick run to the local Food City before picking up the boys from preschool (I had ran out of coffee, I don’t function without coffee) Naturally she had been fighting sleep all morning so as soon as I placed her in the car she was out.  At this point I had a decision to make: go to the store anyway and hope she did not wake up or go get in the preschool pickup line early let and let her sleep and then take my three youngest to the store.  I did not feel like spending twenty extra dollars on cheap matchbox cars or whatever toy happened to catch my boys’ eyes so I opted to take my sleeping beauty to the store.  

I know we would not be long so I carried her. She did look sweet with her little head rested on my shoulder as I made my way up and down the aisles.  People stopped and let me cross in front of them or just stopped to smile at her.  The words “she precious” and “look how sweet she is” came out of more than a few mouths.  When I got to the register to checkout there were only two lanes opened. As I waited patiently a young clerk, early twenties max, came over and asked if I was ready to checkout. I told him I was, after all I was standing in line, and he took my little shopping chart and walked it over to lane 3.  He offered to carry my things out, but I told him I could manage and smiled. I grabbed my three bags in my right hand(I always buy more than what I go in for)  and out the door we went.  As we were walking out the door two more people stopped me and asked if they could help me to my car.

Why can’t people’s response be this way when I have my son with me?  

This question has made me both mad and hurt me over the last couple of days.


JR loves to spend time with me. The problem if we are anywhere other than our home his system goes into overdrive.  When I found out the grocery store had special needs shopping charts I was ecstatic.  The normal charts he can no longer get his legs in and if I place him in the chart there is no room for the groceries.  Does not sound like a big problem, but to an autistic six year old trust me it is. So about a month ago I decided to take him shopping with me.  Just me and him while my husband stayed home with our other kids.   He was so excited.  When he saw the chart his arms started flying. He giggled and said ” hey momma look at me” all through the store.  He is loud, he can’t help it.  He covered and uncovered his eyes a thousand times for the fluorescent lights hurt them. He covered his ears as we passed the cooler because the humming rolling off of them was loud.  He screamed when he saw the lobsters in the water tank. He didn’t notice the people starring at him. But I did. Some shook their heads while others whispered.  Times like these I am thankful for his autism for he does not see that they are judging him.  I even passed a store employee and I watched as her eyes traced my son as to say, ” why are you using that chart he looks perfectly normal”  I tried to let it go but I could not. I went up to the employee and told them to thank the store manager for getting the charts in. I made it a point to tell her he was excited to be able to go to the store with his mom and that I wished every store, not just grocery stores, had these charts.   She facial expression changed a little and she said she would be sure to tell the store owner. I thanked her and proceeded to go check out.  We waited our turn in the long line and not one person offered to help me and me wailing six year old to the car they were just happy to see us go.

I get it, babies are cute and sweet and everyone makes over them.  And for the record my daughter is adorable, however so is my son.  I’m so tired of the stares. And he is only six.  What will it be like when he turns 10, 16, or 21?  Why could they not see that he was just enjoying the day with his momma? Why would you ask a mom if she needed help with a sleeping baby and not ask to help a mom who’s child is having a meltdown?  I get so tired of the If you took him out more he would learn to behave comments.  It does not work that way, he does not work that way.  Why can people see what I see in him? 
From our beautiful chaos to yours look past the differences of others we are all beautifully made. 

Parenting is hard 

Yesterday was the worst. Plain and simple. Since we moved our children have been somewhat isolated from visitors.  Don’t get me wrong, we have had grandpa’s and grandma’s come down and a couple of family members have stopped by.  We have even had a few really close friends make the trip down to see us.  But the constant traffic of caseworkers and in home therapist have since came to a stop. 

And for the record, I am not great at making friends. Add on five kiddos and it becomes almost impossible.  I know I can hear some people shaking their heads right this moment while they say “she asked for it when she took in so many kids” and yes I know what I got myself into thank you.  I’m not trying to blame the kids in anyway, all I am saying is it’s easier to stay at home most of the time rather than tackle the chaos that is my little loves.  Trying to find time to make new friends is just not high on my priority list. But it’s been almost a year and I was thinking I needed to step out of my comfort zone and invite someone over.  After all what could possibly go wrong?   

I’m not sure what I was thinking when I had this brilliant idea.  It started off fine.  The kids and I were outside playing when our guest arrived.  They were running and playing and being normal fun loving children.  She and I sat in my living room and talked for a few minutes before things started going downhill. Diva and Big Al had gotten into an argument that somehow resulted in Elmo getting smacked in the face. So he was crying and the other two were screaming.  I excused myself to defuse the situation and quickly returned to my visit.  Within minutes Diva was slamming the door asking if she could play on a tablet because she “just hated her life and wished she lived somewhere else”. Thats now two crying.   I gave in and gave her the tablet (she normally does not get to just play on one but I really wanted some adult conversation) Biggest mistake ever!!!

As soon as she got it the fight was on.  And things only got worse. By the time my husband got home wild man was running around in his underwear (normal autism behavior but we have been trying to keep him clothed) Both of our three year olds were screaming, one had decided he was only eating candy and pop (soda) for dinner while the other one was just tired.  As for the baby she had graciously covered my soon to not be new friend in cheese puff dust. Diva was still screaming because life as a six year old is apparently the worst thing ever.  Oh and how did I forget to tell you that when my husband asked the kids to come inside so he could get them ready for dinner my wild man called him a Mother F@&$@r.  Yep the whole word. And repeated it three times (again one of his autism ticks) Plain as day, of course it was why wouldn’t it be.  The look on her face told me it was as pronounced prefectly. Lucky me. Apparently he unlocked the parent lock on his tablet and…..well he found Caillou. A very inappropriate version of Caillou. I assumed he was watching the PBS version. Lesson learned the hard way.

I was never so ready for someone to leave my house in my life.  And I’m pretty sure that possible friendship was over before it started.  Why oh why could they not behave for just a few hours for me? I mean seriously was it to much to ask? After a quick dinner, not the candy and pop the kids wanted, but cereal and juice. I’m sure it had just as much sugar in it as the candy would have(I know mom of the year but I just could not at that moment)

By 7:30, wild man, diva and Elmo were asleep(part of the problem I am sure) By 8:30 baby peanut was out. My husband and I had not said a word to each other since our friend left, I looked and him and said “I’m taking her to bed, you got him?” Pointing at Big Al who was tired but still going strong. He nodded his head yes, kissed me and off I went. I was embarrassed. I was angry . I was emotionally drained and I was at a loss for words. I know my kids are no angels but man, that was rough. 

I woke up this morning still in a funk. Still doubting my parenting skills and wondering why in the world God picked me to be their mom. Yesterday was a perfect example that I am not cut out for the job.  I went through our morning routine. Diva was still in a mood as well so she was running late.  My husband had to leave for work and could not wait any longer so I had to take her when I took the boys to preschool, which made her even more angry.  After dropping them off to their schools I headed over to the doctors office to get peanuts 18 month well child check up and shots.

I was still kind of upset with how my kids had behaved as I sat and waited for her to be seen. In the waiting room were two other families. One, a young mother and two kids. Her daughter about four years old and a newborn boy. The other, also a young mother, her mom, her newborn daughter and her son who was 15 months old.  The little boy quickly made his rounds over to my daughter and the four year old. The young moms started chatting about being moms and how it was now even harder with two.  As I held peanut on my lap I smiled a little at the conversation. The one young ladies mother quickly jumped in and said  “Well at least you waited a few years these two are barely 15 months apart” to the other young mom.  The conversation continued about how the little boy was so full of energy and how grandma was to tired to chase after him all the time.  The little girl spun around and around begging for juice while her mom dealt with her very fussy baby brother.  I could see the stress on both families faces.   The one mom was called back and grandma was suppose to watch the rambunctiousness little boy and his sleeping sister while mom went up and filled out paperwork. He was fast on his feet and before the grandmother knew it he was headed for the door.  She was able to grab him before he made his daring escape but she was winded.  She came back over to the waiting area and said ” I’m to old for this. I raised my two girls. All he wants to do is run run run. I’m 43 I’m to old to chase him down”.    43 is to old to chase a toddler?   I just turn 41. I sat in the waiting room with my daughter who is just a few months older than her grandson and let her words sink in.  She continued to complain about raising kids and talked about everything that could go wrong. When the other young mom committed that it was just her and her two kids (no dad in the picture I’m guessing) the grandmother quickly started down the “how are you going to do this by yourself? Parenting is hard” lecture. The young mom was fidgety in her seat and I guess that’s when grandma realized I was looking at her. In a very rough voice she looked at me and said “You’re lucky you just got the one” That’s when I opened my mouth.

I smiled and said that I actually had seven children. And I rattled off their ages “22, 18,6,6,3,3& this one is 18 months”. The room got quiet.  I went on to say that yes parenting is hard but it is by far the best thing I have ever done and that some of my kids were close in age and even though we had bad days the good days far out weighed them. I rambled on for a few minutes until she got my point. Both her daughter and the other young mom were smiling by the time I finished my little soap box talk. 

Peanut was called back, vaccination was given and out the door we went.  I had started off the day angry that my kids had misbehaved so badly the night before but by the time I was finished with the appointment I realized even they are entitled to a bad day every now and then my kids just picked the same day to have their bad day. I get in bad moods and don’t want to do anything. Aren’t kids just little humans? They have the same feelings and emotions the only difference is they don’t know how to express it. 

I did make a few rule changes and tonight was rough but we managed. The tablets and phones are gone, for now no more games or video watching on them. My husband threw out what was left of the Easter candy so that the kids (or us) would be tempted to eat it. Instead of them playing video games while I cooked they played with play dough and drew pictures, daddy worked late so we had to make due with what we could.  It was a long night but we made it through. 

That grandma was right, parenting is hard. There is no right way or wrong way. No matter what we do some will say we are to hard on our kids while others say we are to easy on them. Our kids are going to be good one day and not so good the next. And it does not matter if you have one child or if you have 20 children they are going to act up at some point when you really don’t want them to.  Their kids it’s what they do and how the learn. 

I’m thankful God placed that lady in my path today. By hearing her negative view on kids and live in general it reminded me just how blessed I truly am. And for that I am thankful. 

From our beautiful chaos to yours here’s to more peaceful tomorrow’s.

Simple trip to the Zoo

Tuesday was an exciting day for my five year old son. It was the big field trip to the zoo. For the last few weeks he had talked about “zoo day.”  We had spent hours looking at pictures of the different animals he would see there and learning the different sounds they made. He was excited and I was excited for him.

The permission slip was signed and his lunch was packed and the school had agreed to let his aid go with him. So on Tuesday he got up and got ready and out the door he went.  I dressed our other little ones and dropped them off to preschool and headed to the zoo. 

It was raining some but not enough to ruin the day. Wild man loves to play on the rain anyways so it did not even phase him.  He was all smiles.  He walked in between me and his aid “Ms T” and pointed out to everyone that his momma and baby sister was there.   He engaged well with the questions his aid asked him about the animals and he was eager to share his knowledge of his favorite ones.   My heart could not have been more full. 

He loved the giraffes
 

His class was given tickets to feed the giraffes.  I was not allowed (safety measures for the animals) to take the stroller passed a certain point, so he and Ms T went with the class so he could take his turn feeding the giraffe.  Pure joy came across his face as the giraffe took the carrot from his hand.  He clapped and jumped and smiled from ear to ear.  Life was good. 
When it was time for lunch we made our way over to the picnic tables so that the class could eat together.  The teacher and other staff passed out the brown bagged lunches the school sent and passed out the lunches the parents had sent.   My son sat patiently ( well as patiently as he can) waiting on his lunch.  The teacher asked me several times what I had sent his lunch in.  I replied, “I sent his green camouflage lunch box. The same lunch box he has used all year.”  They looked and looked and then sent someone to the bus to see if it was with another classes lunch.  The teacher then came over and looked at my son and asked him(and me) if he had taken it out of his backpack that morning.  My son’s reply “backpack backpack backpack” while clapping his hands in shear delight.  She then looks at me and says, “Well if he didn’t take it out of his backpack then it’s not here. We are working on teaching him to do things like that on his own.”  “We have an extra school lunch he can have if he wants.”  
Mad is an understatement.  First off, my son is still new to the “regular kindergarten room”. He goes to the regular room half a day and then to his autism classroom the other half and he has only been doing this about two months. He is still getting use to the idea and still learning the day in and day out routine of how things are done in a regular classroom. Second, he takes his lunch to school EVERYDAY because he has sensory issues that prevent him from eating “normal foods”.  Third, I get that they are trying to teach him to be independent however if you know he brings his lunch everyday would it have hurt to check his backpack that morning to make sure he took it out especially if you know he is still forgetting to take it out of his backpack?  I understand that the morning was most likely filled with chaos as the children were excited about the trip, but he is the only autistic child in the class one extra step would have changed the whole outcome of the day.   

We declined the lunch from school.  I am sure that the ham and cheese sandwich was delicious but my son does not eat meat. I do appreciate the teacher giving him her chips from her Subway meal she brought, I do really but I could tell she was not happy about it.   As I looked at him and then looked at all the other children eating their lunch I became aggravated.  This is Exactly why I was worried about him being placed in a regular classroom.  He looks normal and people overlook his abilities and lack of abilities.  But the truth is he is not like all kids his age.  What if I had not been there? Would anyone even noticed that he did not have a lunch?  

I seen the meltdown coming so I walked over to the little consession stand and paid $12 for two orders of nachos and cheese and two juices, one for him to eat and one for me to eat so he would understand it was safe to eat.  As I walked back over to the table I received the “we were told  to pack a lunch” head shakes and glares from some of the other parents while a few of the other kids wanted to know why my son got special treatment and got to eat from the consession stand when they were told they were not allowed.  At the end of the thirty minute lunch I was ready to scream.     

His aid was overly apologetic. She felt terrible that his lunch and been left at school.   She was sorry and I believed her. She went as far as to text my sons other teacher (the one in his autism classroom) to let her know he would need a snack when he got back to class. She could tell I was upset because my son was upset with the events that had taken place.  
As I left the zoo to pick up my preschoolers from class, my son was walking around with Ms T looking at the monkeys.  He was back to his happy go lucky self and I was thankful, still mad but thankful. 

As a mom I worry about things like this all the time. Is he being well cared for while at school? Is he making friends? Are other kids picking on him? Is he really adjusting to the new class or are they just overlooking him?  

And while I want to be mad(I am still pretty ticked) I am going to remember this day as a day my son played with the giraffes and talked to the zebras.  Yes we had a meltdown and people stared but at this point on our autism journey I don’t care.  It’s part of our life.  The smiles and laughs that day far outweigh the forgotten lunch. 
From our beautiful chaos to yours it’s not the situations that make us it’s how we react to them that shape us.

Autism Awareness Month…Why My Son will never be Accepted 

Unless you live under a rock you know by know that April is Autism Awareness Month. Many people will be “supporting” awareness by making donations to local organizations or wearing their blue shirts or bragging about how they “one time helped an autistic child carry books to their class” on social media.  And while all of that is well and good, as an autism mom here is what I would have you do if I could. 
I want you to see my son through my eyes.  He is just a child. A wonderful little boy. Treat him as such!

My boy cheering on our favorite football team💛💚🏈

Don’t whisper things like “I bet life at home is hard with that one.” Or “She should bust his ass, my child would never act that way in public” Or the all famous “Control your kid, what a terrible mother she must be” line.   First off life at our home is just fine. At home our son is not judge for his actions that are out of his control, he has autism he does not see things they way you or I do therefore his behavior is different. Second, I’m thrilled your child behaves for you while you are out where everyone can see.  Truly I am. As for me, I don’t get to pick when or what will cause my son to have a meltdown, but I know busting his ass will Not make the situation any easier on any of us.  And third, I am controlling my kid, trust me on this one.

Me and my little guy enjoying some playtime a few years back

Don’t stare at him at the playground or make your children play somewhere else. As his mom all I want is for him to have the best childhood he can, just like you want for your child.  And while he will not notice that you are pointing at him and shaking your head…. I will notice.  He will not see that you quickly gathered your children up and moved them away from the swings and over to the sandbox…..but I will see and it hurts.  Playgrounds are suppose to be safe places where children can be just that… kids. Please help me help me child be “just a kid” for just a few minutes out of the day.

Wild man and his Papaw laughing at one of his airplane video’s

Don’t ask me if I’ve tried this or that to help with his eating habits or his outburst.  I know you mean well, I do, but autism is my life 24/7 if we thought it could help we have tried it.  As his mom do I want to see my almost six year old eat only yogurts, Barbecue potato chips, and stage two Gerber peas, the answer is no. Babies don’t even want to eat stage two peas. But I want him to eat so we take what we can get.  We have tried dairy free diets and gluten free diets and we have taken ideas from them and other diets to come up with what works best for him.

Wild man loved to pet sit Bacon Bit more than anything

“Why is he still not toilet trained, there is no way I would be changing crap diapers at his age.  If he can pee in the toilet he can poop in it”.  There again if it were your son and he needed you to change his diaper at the age of 6 or at 30 you would do so, because you love him just as I love my son.  And no just because he can pee in the toilet (most days) does not mean he can poop in it. With his limited diet he does not “poo” like everyone else. It’s hard and painful for him.  And before you ask, yes he is on medicine to help and he still only goes once every 8 to 10 days.  Autism moms are painful poo experts.

Me and my boy doing what he loves best
Game day. Go Pack Go

You should take him out more places, that way he would learn how to behave around others”. Don’t you think I want to take my child out? I want more than anything to be able to go to the store or out to eat as a family without the noise or the lights sending him into a major meltdown. I want to take him to an amusement park to ride rides but know the crowd and the lines would overstimulate him and led to more harm than good.  I want to enjoy family get togthers and family reunions just as much as the next person, but I know as soon as he tries to get a snack that he saw hanging out of cousin Karries bag things will get heated because those were not his but for her daughter and she does not want to share.  They will not care that he does not understand personal space or personal belongs. I know school plays and class parties are to much for him, and seeing all of the other kids enjoy them hurts. I want a normal life for him but know his limitations better than anyone.  So I stay home where I know he is safe.

Morning cuddles with this guy ❤️

My son hates clothes so if you get offended by an almost six year old running around in our house in only a pull-up or underwear, please do use a favor and don’t come around.  He has to keep clothes on while he is at school or at church, but as soon as he is home he knows he is safe and the clothes come off. Sensory issues at their finest. Remember this is his home not yours. My job as his mom is to make him feel safe, especially at his house. I’m not trying to be mean but I use up all my patience and love on him (and our other kiddos) I don’t have time to entertain your ignorance about my sons disabilities. If it bothers you don’t come around. You can just call.  You can always reach me on the phone and this will be less hurtful for all of us.

My son is not unruly or a mistake or nuisance or the monster-child uneducated society portrays him as.  He is a sweet, loving, adorable kid that I’m blessed to have call me “momma”  

In Our world we celebrate autism awareness every month, every day, and every minute. I do appreciate the thought of bringing awareness to something that many people deal with day in and day out but the fact is this my son will never be accepted in the social norm of things and that is something I am still trying to process and accept myself. He is loud and he chirps at different things. He looks just like any “normal child” but his meltdowns set him apart. He screams. He sits and lines cars up for hours while he rocks in place. He talks about the same airplanes for hours.  He has a room “his office” where, although a cluttered mess, he knows where every lego or every piece of paper is because they are ALL his “treats” aka treasures.  He plays on his tablet more than I’m sure you think he should, but that keeps him engaged for more than two minutes, in his games and videos he is in control of his otherwise out of control world.  He is so smart and so funny, his laugh lights up my world more than a few times daily.  He did not choose this life but it is what was given to him and he is making them most of it. So as an autism mom I ask this of you.  The next time you see a child don’t be so quick to judge their behavior. If you know a family who has an autistic child offer to watch their child so they can go out to dinner or on a date with their spouse. Encourage not discourage your own child to play with them, laugh with them and be friendly with them. Treat that child with love and respect just as you treat other kids.  Kids with autism are just like other kids trying to make it in this difficult world. They just have to find a way as unique as they are.

My autism awareness 💙

Buying a tshirt or donating money to an organization is great, but getting it actually know someone with autism is a much brighter beautiful action.  And by doing so it could just be the first step to making our world a better place for everyone to live it.   

So this month I will flood my social media with facts about autism and pictures of my amazing little guy in the hopes that one, just one person takes the “awesomeness” to heart and takes time to actually get to know someone with autism.  They might be surprised to see just how bright that person shines.     

From our beautiful chaos to yours God does not create junk. We are all beautifully made in His image. Remember that. Much love