I had a stroke at 42

When I think of Living Wills I think in the future. I see myself at 80 or 90. I’m older, my kids are grown, my life feels complete. Never once did I see myself at 42 with my little loves surrounding me hoping that an ambulance or someone would get to me in time.

But that’s where I found myself on March 29th. Home alone with my five little ones… having a stroke with no one around.

The kids had been at my parents for a few days for spring break. I had picked them up earlier that day and now we were relaxing at the house. My three year old asked if we could exercise while my eight year old rolled her eyes and the boys played. I looked at the clock and figured I had time for some push-ups and a shower before I had to start dinner.

We were both acting silly and giggling, working out with her is so much fun. At the start of our third series I became real dizzy and extremely hot. I laid my head down to catch my breath while little miss continued to dance away. She laid her hands on me and asked mommy you ok? I tired to get up but I could not. My five year old son ran in screaming he wanted popcorn. It took everything in me to pull myself and walk into the kitchen. I tried several times to type in two minutes for the popcorn and could only get numbers like 55 or 33. I knew that was not correct but I knew I could listen until the popcorn stopped popping and get it out. I made four small bowls and told the kids to come. When I went to walk into the living room everything went dark. I was yelling for my kids to come but I could only get out “Sierra” over and over. After a few minutes my eight year old came out saying “Mom Sissy is NOT here stop yelling for her!” I placed my hands on her shoulders and tried to explain I needed help but all I could get out was “Sierra Sierra” By the look on her face she knew something was wrong. She looked for Sissy in my phone but could not find her but she did find her dad. I hit the auto dial and heard him answer, I tried to talk but it was broken. He knew something was wrong and called the ambulance and raced home.

Time stood still. My kids, two of whom have autism, were running around unaware of how bad mom really was.

The ambulance pulled in and the kids flipped out. The Lights.The sirens. To much stimulation for my little ones. They come in and I tried to get them to shut the door but no one understand me. My son was running towards the door, if he got out he would be gone. The paramedic saw me getting upset and asked what could she do I pointed at my son by the door and my five year old and with every ounce in me I managed to get out “both autistic” Her eyes locked on mine and she understood without me saying anything else. She got wild mans attention and closed the door.

I could hear the kids crying and asking where’s mommy going questions but my mind could not focus on anything. I was rushed out the door to the waiting ambulance. The EMT’s assured me that they would watch the kids until my husband or parents could get to the house.

The ride to the hospital was a blur. I remember opening my eyes and hearing them ask my husband a list of questions. He was holding my hand and he looked terrified. They turned to me and seeing the look on his face I told them to save me.

I could not feel my left side. The hours turned into days. My memory for the last six months is simply gone.

But by God’s grace I survived.

With therapy I have regained the use of my leg. My voice is becoming stronger and clearer each day. Ironically the spinal cord stimulator that works my left arm, thanks to a car accident in 2000, that tells my nerves to “work” continued to tell my nerves to “work” even though my brain was telling them no shutdown.

I don’t recall much about those days in the hospital. But I do know God placed me in the right hospital to get me to the right rehab center where I was blessed with amazing physical therapist and speech therapist. Those ladies and the other patients I met while there saved me.

I may never be the person I was before my stroke. I may never fully recover my memories or have the answer to why this happened to me. Heck it’s taken me a month to type this short post, I’ve missed writing and you guys. But I do know I am still here. I survived. With each day I will get stronger. My kids still need their momma and I still have a lot of love to give.

And that my friends is something worth celebrating.

Celebrate the small victories, those are the ones that happen every day ❤️

24

It is hard to believe that you’re 24 today. Where do time go? How did it happen?

From the moment I knew about you I knew what my purpose on this earth was. Was I scared? Yes. Very much so, I was young, only 18, and God had in trusted me with the job of being Your Mom. Not just anyone’s mom, yours, how could I say no? But still the questions were there: What in the world was I to do? What if I was a bad mom? What if you did not like me? All the what if’s flooded my mind. And then you arrived and all my worries stopped.

At 12:49 in the afternoon you made your grand entrance. All 8 pounds and 13 ounces of you. You by far, and yes I may be a little biased, were the prettiest little girl I had ever seen. You were mine and know matter what this world would throw our way my job was to protect you. Above all I was to love you like I had never loved another. I had a propose, I had you. My beautiful little one.

As the days turned to years we had our share (I know it is shocking to many lol) of ups and downs. We had our good moments and our not so great moments, but even in those not so great I hope you know I was doing what I thought was best for you.

Because of you, I was given the strength to get out of an abusive marriage. You saw something in me that was worth fighting for. You had seen the struggle and convinced me to get out. Thank you for believing in me when I did not fully believe in myself.

Now ten years later daddy T and I could not be any more proud of you. I can’t believe we are so happy and have so much joy in our lives. Who would have thought that after so much darkness there could be so much light? I know I didn’t see five little loves joining our forever family. Did you? So thankful God believes in second chances at love and happiness.

And soon will come September and God will bless you with your own special little guy. The love you two will share will be magical I am sure. I can’t wait to see you as a mom. I know that you will be fantastic, God had big plans for you. I look forward to seeing you grow into mom life, to hold your hand when you think you have failed ( but trust me you will do great ), to wipe a way your tears and to let you know how special you are. We have come so far and I am thankful God has given me to gift of being a Lolly aka grandma. I look forward to seeing where this adventure takes us.

I love you Sie Happy 24th Birthday!!

His Community

My son had an appointment with his geneticist earlier this week. Driving four and a half hours to see a doctor may sound crazy to some but with him when we find a doctor that works we stick with them. We made a mini vacation out of it.

On Sunday, after my parents arrived to watch the rest of our little loves, we loaded up and headed south. To keep himself busy JR packed his backpack with his LEGOs, his Five Nights of Freddy’s LEGO figures, a notebook with three pens, his tablet, headphones, juices, gummies, BBQ chips, and and a large bag a popcorn (you know all the essentials for a road trip).

He was so excited he could barely sit still. The idea of staying in a hotel had peaked his interest. We don’t stay in hotel rooms often, normally when we vacation we have to rent a cabin, hotel rooms aren’t made for large families. Most of the conversation going down was about the hotel room. Questions like; where he would sleep, would there be food, could he stay up all night, and how long would we be staying.

As we got close to our destination I told him we were going to meet up with his old bus driver for dinner. He had the biggest smile come across his face. Momma I get to see my people? I can’t wait.

His people.

We made it to the restaurant and I scanned to see if there was a table close to the door. He does not do well with large crowds or noise. We don’t go to restaurants that often because of this. My anxiety was high. I knew we needed a table close to the door so we could get out fast if it became to much for him. There by the door, as if God knew we would need it, was table it just needed to be cleaned. Perfect. We sat him close to the window with my husband by his side. I sat directly in front of him. When his bus driver came through the door he started jumping up and down. She asked to set beside him so my husband moved and sat with me. I was nervous he would try to run without one of us right beside him but he didn’t. He was so excited to see her. For the next 40 minutes he colored on his menu, played his tablet and drank his “kitty cat shake” (Kit Kat shake) We caught up on all the local news and filled her in on all the things he was doing back home. I have never seen him be so still in a restaurant. It was a moment I will not soon forget.

We said our goodbyes and passed out hugs and headed to the hotel. He was fascinated with everything in the room. He loves office chairs and he was over come with excitement when he saw the office chair and desk in the room.

The evening was spent exploring the room and taking a bath. It was a relaxing evening.

He of course woke up around 5 the next morning. He is such a happy child when he wakes up. After watching a little TV we gathered up our things and headed out the door for some breakfast. Again we had to go inside a restaurant. I was hoping the buffet would have Cheerios, but it did not. Only oatmeal. He does not eat oatmeal. My husband picked him up some yogurt hoping everything would eat it. After a few minutes inspecting it he decided it was safe to eat even though it was not his normal orange cream flavored, he would try the strawberry. After eating he and I explored the gift shop while his dad paid our ticket.

We made our way to the doctors office and the appointment went well. He had more tests done and he talked up the nurses, he is such a little flirt. The doctor went over the previous test results and we scheduled a follow up appointment. We were there for two hours. Our boy did well but he was beyond ready to leave when the time come to go. So as a reward we took him to Chucky Cheese. Being a Monday morning we had the place practically to ourselves. We bought him a play pass and he bounced, literally, from game to game. He LOVES arcade games. He has several handheld ones at home but he was in heaven being able to play “big ones”.

After our Chucky Cheese adventure we headed over to his old school for a visit. The secretary knew we were coming and quickly buzzed us in. Everyone he ran into smiled and greeted him. The secretary told us his teachers class was in the cafeteria so we got our visitors badges and headed that way. That’s when it happened.

We cut the corner to the cafeteria and the room erupted into squeals and giggles for our little guy. While his teachers class was not in there all of his old classmates were. 30 plus first and second graders all waving and saying “hi JR” “look it’s JR” “hey buddy” “are you coming back?” We miss you!

JR was stunned. So was I. Here he was included in regular classes. He had so many little ones help him throughout the day. He had friends. True friends that miss him.

We made our way to his teachers room and he was greeted with hugs from everyone. It was still lunch time so he was able to go over to his favorite toys and play while the other students finished up. We visited for a little while and then had to tell him it was time to take a picture with his teacher and aide. He paused. He knew if it was time to take the picture it was also time to go. He fought back tears while we took the photo because he didn’t want to leave. This was his safe space. Here he was loved, included, and one of them.

It broke my heart to leave.

The car ride home seemed to take years. He talked about seeing them again and when would we go back. He misses all of them.

Don’t get me wrong, he loves his teacher here. She is amazing and absolutely adores our little guy. But it’s different. His old bus driver was texting me and calling me to make she she got to see him. His new bus driver, I’m not even sure he knows our little guys name. The school here is much smaller and autism is not something he hear talked about. There autism was not a bad word, they taught about it and included kids with autism in everything. They were not those kids with autism, instead they were friends.

He misses his friends, and I do too. I’m not sure he will ever have those bonds here. And that makes me sad. He deserves to have friends just like every other child. He deserves his people.

I will continue the fight for him to be included, to be seen, to be loved just as every child should be. Together he and I will find his people here. I know they are around we just have to look a little deeper.

Be sure to pick up your copy of our story over at beautifulchaosmomma.com or on Amazon at https://www.amazon.com/gp/aw/d/1973619784/ref=tmm_pap_title_0?ie=UTF8&qid=1553170235&sr=8-1-fkmrnull

Fighting Insurance Company’s for Services

Life in general can be hard. Being a parent can be hard. Being a parent of a child with special needs can be… you guessed it hard. Really. Hard.

As many of you know my husband and I are the parents of seven amazing and uniquely different children. Our oldest daughter and son are biologically ours. Our five little loves are adopted. All five of our little loves have developmental delays. Four have Attention Deficit Hyperactivity Disorder, two have Oppositional Defiant Disorder, one has Reactive Attachment Disorder, all five show signs of Fetal Alcohol Syndrome Disorder, and after receiving test results last week three have autism.

I would like to say I was surprised by the diagnosis but I’m not. Nothing surprises me anymore. All the signs were there. Sometimes you just have to have a doctor say it out loud. Our eight year old is what doctors call, high functioning. Our seven year old falls in the, moderate range. And now one of our five year olds also falls in the, high functioning range.

What have I discovered with having three on the spectrum? I have discovered that there are not enough services in our area. Actually there are not enough services in our state. And that makes me both sad and mad.

Our children are covered under the state Medicaid program. As part of the adoption they will receive a medical card until they turn 18. Its the states way of saying thank you for taking in and adopting this child. The medical card covers their treatments well in most areas. My husband also added the kids to his insurance to cover anything that the medical card did not.

Our seven year old needs extra therapy. He no longer qualifies for early intervention services. He is lost in the unknown. While we lived in Tennessee our children had a variety of services. There was Occupational Therapy, speech, and counseling services. They had even set up Applied Behavior Analysis services for the kids. Our seven year old was blessed to be in a school that provided these services in house. They were receiving everything they needed and life was good.

Then we moved back home.

I am so sick of fighting. So sick of the, we don’t cover that, statement from the insurance companies. And so tired of hearing, we don’t have a provider in your area. The closest ABA therapy center to us is over an hour and thirty minutes away. That means we would spend three hours in the car to make the visit happen. As any mom who has a child on the spectrum, I agreed to do just that. He needs the service and I will do whatever I need to do to get him the services he needs. I was happy in the fact I had finally find someone who was able to help. Imagine my disappointment after I got there, and had taken a tour of the facility, when they said, oh sorry we can’t except either of your sons insurance plans.

The Medicaid card covers services at 100% if the service is something they cover. Applied Behavior Analysis is not one of those services. It’s not covered okay, my husbands insurance should then pick up the difference. Wrong again. His plan does not see Applied Behavior Analysis as a needed service for our son. So here we are, we finally found a place but now that the new year has rolled around and new plans are in effect, we can’t provide basic services our son (and possibly our daughter) need. Explain to me how is that possible?

According to the Centers for Disease Control 1 in 68 children are on the autism spectrum. With numbers like this shouldn’t there be more providers to help? How can Medicaid not pay for services needed? How can major insurance companies not see the need for these same services? How can our children be covered under two different insurance plans and still not be able to receive services? I’m at a loss.

Yes we could pay for services out of pocket, the lady at the center told me so (how nice of her) but let’s be real. We can’t afford that. No one can afford that. I don’t care if you work in fast food or your a chief executive officer, paying out of pocket for services is expensive. Period.

West Virginia is in the middle of a huge debate over bringing in a Managed Care Organization to take over their Medicaid billing services. Instead of paying out 30 million dollars to someone out of state to “manage” payments how about spending that money to pay for services our children actually need? How about bring more providers that specialize in Applied Behavior Analysis or Reactive Attachment or other therapy programs for those for need them. Crazy thought I know, but as a parent who has children that need these services it’s my thought.

It’s hard being a parent in today’s world. Add on the fact that our children have needs makes it overwhelming at times. We fight for aides in classrooms (that’s a whole different post) we fight for Individualized Education Programs, we fight for equal treatment, we fight for normalcy. We fight for our kids.

And I will continue to fight. Why? Because they need me to be their voice. They need someone to stand up and say they matter. They need someone to say we need services for our children in our areas. I will continue the fight because I have to.

The fights are long, the fights are loud, the tears will fall but it is worth it. Worth it all.

Never give up the fight.

Pick up a copy of our story over at beautifulchaosmomma.com or on Amazon at https://www.amazon.com/gp/aw/d/1973619784/ref=tmm_pap_title_0?ie=UTF8&qid=1551187379&sr=8-3-fkmrnull

Roles Reversed

Hello everyone. Have you ever thought about the role you play in your family?When I was growing up my family consisted of my dad, my mom, my younger brother and myself. When I was little my job was to protect my little brother. Not because my parents told me I had to, but because I wanted to. I took being his boogie monster chaser, don’t eat that or I’ll tell mom, slow down or you will fall advice giver very seriously back in the day. I still try to give him advice, but he turned off his listening ears a long time ago lol. But I try, after all what are older siblings for if not to look out for younger siblings?

When I had my own children, my daughter looked after her little brother from the moment he came into the world. Heck she still tries and they are both in their twenties. As the oldest she wants what’s best for him, whether he realizes it or not. And now that she is the oldest of seven her role has become even more important to her. She is after all Big Sissy.

Older siblings automatically take on that role. It’s human nature. Well most of the time.

My husband was out of town working a few weeks a go so it was just me and the littles here at the house. When dad is not here JR is lost. His anxiety is at an all time high and his behaviors tend to increase. Those days are hard, really hard. On those days I find myself looking into his future. Our future. We have come to the realization that he will most likely be with us our whole lives. We accept that. But who will care for him once we are gone? Dark subject I know but please bare with me.

See he is older than three of our children. Typically he would be the one caring for the younger siblings if the unthinkable were to happen after he reached the legal age. The problem is…He simply can’t.

However over the last year we have noticed a reversal of roles in our household. Our five year old Al has taken on the job as JR’s big/little brother. He makes sure JR always has someone to play with if he wishes to play with another person. He lets us know if JR is getting anxious about something if we are out of the room. You can hear him throughout the day saying things like Hey JR no put that in your mouth. No running you get hurt. No no no we no climb. He wants to keep him safe. He wants to make sure he is okay at all times. He has taken his role very serious, well as serious as a five year old can. He does not realize their roles are reversed, he is just doing what he feels he needs to do.

Yes they still have their disagreements, all siblings do, but to see Al take notice of his brother the way he has is heartwarming.

No, I don’t want to think about the what if’s but as a mom I do. And yes I know for a fact my older two children would take care of all five littles if something did happen (we’ve had that talk) but it’s nice to know that JR will have many people to look after him, protect him, love him long after me.

There is nothing more precious than the love among siblings.

Be sure to check out my book Beautiful Chaos Our Story about Foster Care, Adoption, Faith, and Love over at my website http://www.beautifulchaosmomma.com or on Amazon at https://www.amazon.com/Beautiful-Chaos-Story-Foster-Adoption/dp/1973619784/ref=mp_s_a_1_1?ie=UTF8&qid=1546484084&sr=8-1&pi=AC_SX236_SY340_QL65&keywords=chaos+crystal+smith+paperback&dpPl=1&dpID=517JCC6SmQL&ref=plSrch

From our beautiful chaos to yours have a great day.

Looking Back on 2018

Happy New Year!!

Hello everyone.

Can you believe it’s 2019?! Where in the world did 2018 go? I guess the Gretchen Rubin saying is true, The days are long but the years are short. 

As we settled in for a night of movies, popcorn, pepperoni rolls, and giggles with the littles I could not help but look back at what the past year looked like for our family. What a difference one year makes.

Last January we were in Tennessee. We were fostering a beautiful little girl. She fit in perfectly with our little loves. That was actually her second time with us. Man I miss her sweet smile, the sounds she made while she slept, and the way she took in everything around her. I am happy she is now with family members that can care for her the way she needs to be. For a moment we thought she was meant to be ours, God had other plans for her and for us. So we will continue to pray for her, her parents, and those taking care of her. Baby Peaches will forever be in our hearts.

In March she went to live with her grandmother, and our lives went back to our normal. The kids were doing well in school. My husband was busy at work. All in all things seemed to going well. I became a published author in March. Beautiful Chaos Our Story about Foster Care, Adoption, Faith and Love hit Amazon (and some bookshelves) on March 14. I never thought it would happen, but it did. It finally did. Some dreams are meant to be reality. In March my mom and I were able to attend a Women of Joy conference. Powerful messages and wonderful worship filled three amazing days. While there I had the pleasure of meeting Lisa Harper in person. Her testimony is so touching. Her books are amazing. Being able to give her a copy of my book and get a copy of her book was amazing.

In April we welcomed a very tiny sick little boy into our home. It was just for a week until his grandmother could get things in order at her house so she could care for him at her home. It just happened to be the week of Easter. What a perfect week to have him with us. He was able to attend one of the most memorable Easter services I have ever been to. He was prayed for and prayed over by our pastor and his wife. And even though he was only with us a week he too will have a place in our hearts. Its not about the amount of time we spend with someone, its about what we share in that time that matters.

May brought about a trip with my oldest daughter and my momma. The previous Christmas Sierra and I surprised my mom with a tickets as one of her presents. My mom, recently retired, had always wanted to take a cruise but was never able to go. My dad does not care for the ocean so Sierra and I decided we would take her and make it a girls only trip. We had a blast. Seeing my mom so happy and excited was truly one of the highlights of my year. Maybe we can make it a yearly thing? Maybe.

My mom, daughter, and I sailing to the Bahamas

May also changed things. My father in law was not doing well. I’ve said it before and I will say it again cancer sucks. He was fighting a losing battle and time with him we knew was growing short. My husband and I started talking about moving back home but it was not as simply as “just moving home”. The thought of taking JR out of his school scared us. I knew our other little loves would adjust fine, but him, we worried about him. His needs are much different than theirs. We prayed and talked and talked some more trying to figure out what was best for all of us.

June we received a call for a little girl and welcomed her into our home. She was a bundle of joy. Always laughing and by far the best sleeper we had in a long time. Our little loves loved having her with us.

I was not feeling the best and after talking with my doctor I was scheduled for a hysterectomy in mid June. During the pretesting the doctor discovered something wrong. It appeared that I had had a mild heart attack. I was floored. I’m only 42. The doctor had more tests ran and it was later determined that it was not a heart attack just a heart issue (still not completely sure what happened or what the issue actually was.) But truly thankful whatever it was God saw fit to fix it. Thank you Jesus!

With my health scare and Todd’s dad sick we made the decision to move back home. We needed to be closer to our families. I brought the kids up and they spent most of the summer at my parents home. I would travel back and forth between to two states. We still had our foster daughter and she had visits and meetings we could not miss. When we knew for sure we would be moving (still in the middle of all my testing on my heart) we discussed her case with her caseworker, her GAL (guardian at litem) and her mom. The decision was made that she would be placed in another foster home where she could continue to thrive while her mom worked her plan to get her back. It was with a heavy heart we had to let her go. The day I dropped her off to her new foster family was hard. We did not plan for her stay with us to end like it did. Last I heard she is doing great and her mom is working hard on things to one day have her back. I pray all works out.

August arrived before we knew it and we closed on our new house, the day before school started. Talk about crazy timing. Todd was still working in TN, traveling back and forth to see us and his dad. School brought about new schools, new teachers, new everything for our kids. It was a difficult time but thankfully everyone is adjusting well now.

October we celebrated Halloween. We had the Ghostbusters along with the Marshmallow man and the cutest little Dale Jr I’ve ever seen. That would be the last time the kids and I would see my father-in-law. It is still so hard to believe he is gone. I am thankful for the memories he gave to my kids, to me. He was truly an special man.

November is a blur. That’s when our world changed forever. When Jesus called him home. He fought a hard fight. We went through the motions at Thanksgiving. I cooked. I wanted my mother in law’s Thanksgiving to go as smoothly as possible. My orders from my seven year old were to make sure she was happy. JR knows she misses him for he too misses his papaw. They were inseparable. Not a day has went by he has not asked about him or how he can get to him.

December my husband was able to finally move home. After our TN house sold and things at his work slowed down he was able to transfer back up here. Having him home has been the best gift. We are once again under one roof. We are stronger when we are all together. Christmas was a busy time, with our five little loves and our daughter and her boyfriend, and our son and his girlfriend, our house was filled with laughter and presents. Lots of presents. There were laughs and some tears, but over all we had an okay Christmas. We missed papaw’s laugh and smile, I guess that’s something we always will.

2018 brought about many changes for us. Life is about change. We must learn to live life and love the people we are surrounded by. We must forgive others and forgive ourselves. We must be patient with what’s going on and see where God leads us. In 2018 we made some new friends (stopped talking to a few). We discovered we are stronger than we realized and our faith grew. Our hearts were broken and tears we shed many times, but through it all we had each other. I am not sure what 2019 will hold for us. And that is the beauty of change. My prayer is that whatever life throws at us in the new year we learn from it, we grow from it, we are blessed by it, and we embrace it. Through it all may God keep us and guide us all the way.

From our beautiful chaos to yours, May 2019 be a very blessed and exciting year.

Check out my book over on my website at beautifulchaosmomma.com or on Amazon https://www.amazon.com/Beautiful-Chaos-Story-Foster-Adoption/dp/1973619784/ref=sr_1_3?ie=UTF8&qid=1546358274&sr=8-3&keywords=beautiful+chaos+paperback

Grief and Autism

Many have asked how JR is doing.

So with the okay from my mother-in-law, let me tell you about a boy and his best friend, my son and his papaw.

Losing someone you love is hard at any age.  Its hard to wrap our minds around the idea that our loved one is not here physically anymore. It’s hard on adults to process the loss, so just imagine you are seven and autistic.

I was blessed to have my father-in-law in my life for over eleven years.  He was one of those guys that loved to help everyone. I swear he never met a stranger. If he had it and you needed it, well then it was yours.  His smile was infectious and that laugh, oh how I miss that deep belly laugh.  I did not know him as long as most, but in my time with him I discovered how much and how deeply he loved people. And you know what else? He loved being a papaw.

When my husband and I got married, my in-laws became instant grandparents to my two preteen children.  When my husband and I decided to become foster parents, they were on board with the idea and were excited for the journey that awaited us all. And from the moment our wild man was placed with us, all of our worlds changed.  From the second he came to us, so tiny and so sick, I knew he was ours.  And on a cool day in September 2013, two and a half years after wild man was first placed in my arms, papaw Jim(along with our whole family) was in the courtroom with us as JR became forever ours. JR had us all wrapped around his little finger from the beginning. But the two of them had a special bond. They were inseparable.

JR went everywhere with papaw.  Whether it was to the grocery store or down to the wrecker (tow truck) shop, it didn’t matter to them. He was so excited when papaw bought him his own car seat for his truck.  JR loves that truck, and he loved going bye-bye with his favorite person. My father-in-law never saw our JR as a child with autism, to him he was just his grandson. His beautiful, full of energy, always laughing, popcorn eating, adventure seeking grandson. 

After the “twins” arrived to our home, my father-in-law offered to start taking JR to his OT, speech, and music therapy appointments on Fridays.  It quickly became their thing.  My in-laws would pick him up shortly after I got our daughter on the bus and off they would go on their weekly adventure.  He loved spending his Fridays with them.  My father-in-law also filled in for us at his preschool when they would have special days or field trips that my husband or I could not go to.  He always found a way to make sure JR was included in everything at the school. He became more than just JR’s papaw, he was the classroom’s papaw.

In my son’s words, Cancer sucks ass. And he is 100% correct, cancer does suck ass.

My father-in-law was the healthiest sick man I have ever known.  He never complained or questioned why him, at least not in front of us.  He always had a smile on his face when he was around the kids.  They never seen him as sick. Hearing the words, he has cancer, took months for all of us to process.  How could he get sick? He was our rock. The doctor’s had to be wrong. He was a fighter. He did everything he could to stay strong and beat the hand that laid before him. As the days turned into months and he became weaker we tried to prepare ourselves and the kids. We explained things to our little loves in a way that we hoped they would understand, but how can we expect them to understand when we don’t fully understand ourselves? 

Halloween night, I called to see if he was up for some trick or treat visitors.  I drove my twelve passenger van through the sea of candy hungry neighborhood children so that our kiddos could get to papaw and mamaw’s house. Papaw made his way out to the porch and stood while holding the back of a chair. He made sure to tell all the kids he loved them and made sure they all got more candy than they needed. JR asked if he could go get a prize out of the treasure box and of course he was gone before anyone could say yes. We visited for a few minutes and gave hugs goodbye and off we went. When we got back into the van the first words out of JRs mouth were, momma papaw must be getting better. He was standing tonight. I will forever be thankful for this last memory he gave to our kids. I know it took everything out of him to come out and stand and pass out candy. But he did it for them. And he did so with his signature smile on his face.

JR did not just lose his papaw. He lost his best friend.

There has not been a day that papaw Jim is not mentioned at least a thousand times by our sweet boy. JR can not process what has happened. He is fixated on the why’s and how comes. He is lost without his number one fan. He loves for us to tell him things the two of them done, and he always has a few of his own stories to share. He sleeps with the flashlight he got out of the treasure box on Halloween night. And he talks to papaw’s picture he had me hang in his room. He asks if we can make an airplane and take a trip to heaven and he is full of questions about cancer and death. Some days he is happy, knowing he will see papaw again other days he cry’s non stop for he misses him more than anything.

The two of them shared a love of the ocean, swimming, and eating cheese flavored popcorn. They loved “fixing” things and taking drives. There will always be a great big place in JRs heart for his papaw Jim. And because of JRs unique look on life I know for a fact papaw Jim will live on through him and us. He may not physically be here with us but his spirit is strong, especially around our wild man. I know when JR is in his room and I ask, who are you talking to? And he replies papaw Jim, I know that he really is. Thank you for looking in on him. Life will be hard without him but you can bet JR will remind us of something the two of them did that will bring a smile to our faces daily. Their relationship will live on through the memories they made.

So thankful for the memories, precious, precious memories. In JRs words, Heaven is an extra special place now with papaw Jim in it. Yes it is little buddy. Yes it is.