Trick or Treating with Autism 


Autism can make the simplest things…less simple. And trick or treating is no exception.  Last year we were still new to the area so we let the kids dress up and run around the backyard. They took turns ringing our own doorbell as I gave them candy. It was simple it was safe and most importantly Wild Man was able to just be himself.  This year however, the kids wanted to venture out and gather candy like we had back in my hometown before we moved.  I knew this would be a challenge even with help from my husband.

The last few days leading up to tonight’s outing we went over The trick or treating rules.  Basic things like: staying with mom and dad, no running off, saying please and thank you, and being respectful to all those around us.  Down here they do not trick or treat like back home.  There hundreds of candy hungry kids flood the subdivisions in search of the perfect sweets.  Here it’s not about going house to house but more of the local churches doing what is called trunk or treat. We decided to go to a church close to our home so the kids could make their big candy score.  

The trunk or treat was suppose to be from 6 to 8.  The church had hot dogs and other food for people to eat and they had games set up where kids could play and earn candy.  Which for most kids would be fine and I’m sure everyone that attended had a fantastic time…everyone except our Wild Man.   We arrived right around 6 (it was still daylight so Wild Man was okay with being outside) We signed the kids in and were told we could get something to eat.  If you have ever been trick or treat with young ones then you know the last thing on their little minds was eating actual food they want candy and nothing but candy.  We passed the food station and walked through the game stations over to where the trunk or treat was suppose to take place. The problem….they were not ready for the kids.  We were told we could play some games while they set up.  Wild man was getting anxious but we tried to play a few games.  He didn’t understand why he could not just get the candy from the bowls. Why me play game momma? Why????? We tried for about 20 minutes before he got extremely upset.  We walked back over to where the trunk or treat was to take place. It was still not ready.  I looked at my husband while trying to keep ahold of Wild mans hand and made the call to head back home.  Our other little loves were not thrilled we were leaving. Having a sibling on the spectrum is difficult on them sometimes.  They know he has limits but their kids and sometimes they just want to be able to do what other kids do.  As we walked back home we saw a few of our neighbors lights on. I look at my husband and he knew what I was thinking and he shrugged sure why not?  

In our large subdivision we walked along with our five little loves.  Out of all the houses in our subdivision we found four that were passing out candy. Four.  But four was enough.  At the first house Wild Man asked the lady’s name and then told her he was moving in with her. She was sweet and laughed it off.  At the second house they passed out suckers and Whopper candy. Wild man loves both so he was okay there. Third house he tried to take more than a few pieces and when the gentleman said Oh only a few big guy, he started screaming and tried to step on the mans foot. By the fourth house he was done and when they opened the door he ran in. (When he’s done he’s done. He saw their TV on and wanted to watch) The gentleman at the door caught him and was very kind about the situation.  As we went walked down the neighbors front porch steps I said it was time to go home.  That’s when Elmo and Diva started fussing. It’s not fair.  We hardly have any candy.  Why do we always have to stop when he gets upset? As we walked up our driveway they both stomped as loud as their little feet possibly could.  

I am use to things not working out as we plan.  So as they fussed I went to the kitchen and pulled out Plan B aka backup candy.  I had the kids open up their bags and I filled them with their favorite sweets. Smiles finally covered their faces as they settled in with their candy to watch a Halloween special before bed. They were happy and Wild Man was safe and comfort in his own home so he was happy. I hate to say it but as an autism mom I always have a backup plan. You have to have a backup plan.

It’s not fair, I get it. It’s hard on them, him and us. All I want is a normal life for all my kiddos. Some days we get through without any major upsets other days it’s meldown after meltdown.  All we can do is take it day by day (and always have backup candy just in case we need it) Our normal is different from most. And I’m okay with that. 

Even though we did not get to go to many houses or play all the church games we did get out as a family. We did manage to get out of the house for a little while and he did have fun. And he was able to wear his mask for awhile. (Huge win) We could set and dwell over all the things that went wrong or we can celebrate the small victories.  We will celebrate and eat candy I bought. 

Back to School 

Well it’s that time of year again.  The 2017-2018 school year has kicked off.   This year we have one in his second year of college, one in 2nd grade, one in 1st grade and two in preschool.  Our oldest daughter graduated college last May and our baby girl is at home with me seeing that she is not yet two.


With each school year we all can count on one thing….Germs. And even if your child does not share well with others, they will share their flu bugs and viruses I’m sure of it.  It does not matter how much the school cleans someone is always kind enough to share their sickness with with the rest of the class. It happens. And this year is no different.  We made it a full two weeks before the stomach virus hit our house with vengeance.  Over the last week it has claimed five victims in our house: my husband, Wild Man, Elmo, Diva, and myself.  Thankfully baby girl and Big Al were spared this go around. So far.

The good thing about were we live is that we get what I call unique holidays at our schools.  The kids had a four day weekend last week. They were off last Friday, due to the NASCAR race and then they were off Monday for this little thing called a total eclipse, maybe a few of you heard about that 😉.  Even way, with the extra days off thankfully the kiddos didn’t miss much school (Diva was the only one who actually missed school with her being sick on Tuesday) 

While taking care of the sick ones I could not help but notice that even though they all ended up with the same virus they all responded to it differently.  With Wild Man even though he was sick he did not slow down nor did he complain.  If I wasn’t having to clean up after him I may have never noticed he was sick by his actions.  That’s one of the hardest things about him being autistic, he does not/can not tell us he is sick.  We just have to watch and see what happens and try our best to fix it.  With Elmo, if he is sick you know it.  He becomes mommy’s cuddle bug.  He wants to be held and babied until he is all better.  He still believes in the power of “mommy’s magical kisses” and if he receives enough of these boo boo kisses he will be cured from whatever ails him. With Diva, well if someone has something she does not she can convince herself she has it.  She wants left out of nothing.  She is a hypochondriac.  I never seen her actually get sick but she insisted she was dying mover the less. And then there’s my husband….if any of you reading this are married you know what I’m talking about.  I love him dearly, so I don’t need phone calls or emails telling me that I’m ungrateful or that I’m being a disrespectful wife keep those to yourself, but I can’t be the only wife who’s husband needs more attention than a child when he is sick.  He came home from work and laid on the couch. I asked him to go to bed several times but was met with the “I’m fine right here don’t worry about me” comment. I know he was fine,  but our house still must function whether he is sick or not.  Do you know how hard it is to try to keep five kids quiet while their dad tried to rest on the couch?  It’s almost impossible.  ***ugh*** And then there’s me, mom.  When mom gets sick, well mom must keep going.  We power through the upset stomach and headache because our family needs us; sick or not.  It’s what most moms do. 

The way we responded to the stomach virus made me think about the way we as Christians respond to God.  We all had the same virus, God offers us all the same love.  We all responded to being sick differently, as Christians we all respond to God’s love differently.  Some of us choose to cuddle up with Jesus and seek Him out to make us feel better and feel safe. Others can keep on going day in and day out without slowing down to acknowledge His presence.  Still others crave Him when it’s convenient for them and then quickly turn back towards worldly things when we want to fit in.  And still others just keep going through life the same way as always because that’s just what they do, right or wrong.  

Walking in faith is not always easy and no two people walk this path the same way.   Our relationship to God is a personal one, you can’t do or respond the exact same way as another person because that is their journey not yours.  Just as the stomach bug effects so all different so does God’s grace.  What He has planned for me is not what He has planned for you.  We are all unique in His eyes yet He loves us all the same.
From our beautiful chaos to yours: Have a wonderful weekend everyone!!!  Remember God loves you just the way you are❤️

I Am, I am Not….Where do I fit in with God’s Plan? 

 

Sunday mornings are Always crazy at our house.  Trying to get all our little loves ready and out the door in time for morning service can be challenging at best.  I knew yesterday would be no different.  If anything it would be more difficult once they realized they were going to their new Sunday school classrooms. 

It wasn’t one big thing but many little things that had me thinking It’s just one service, no one would miss us if we didn’t go today. What harm could it do by staying home?  Then I realized I had said those same words last week when our six year old autistic son simply refused to go so I stayed home with him, baby girl, and Big Al while my husband took our other two children to service.  It’s so simple to slip into the routine of not going when you have small children. There are days it just does not seem worth the fight to go. And it’s not that they dislike church, they really enjoy church, it’s just the getting ready without fighting they can’t seem to do. And we want them to go.  We want them to grow in their own faith. So as I looked at my little loves, two of which were fighting over what cartoon to watch, one still sleepy and wanting her bottle, and one refusing to put on a dress because she wanted to wear the pink shorts and green shirt she had picked out instead, I took a deep breath and said Not today devil I can handle whatever you throw my way.   

God knew I needed to be at that service.  

Our pastor’s message was on John the Baptist. I sat in the service with my husband by my side thinking about the mess our morning had been. Somedays I don’t feel I am enough or good enough.  The day in day out battles we face with our daughters RAD and our sons autism can be overwhelming at times, and let’s not forget we have three other little ones who are well under four so I will leave it at that.   We had made it to service and managed to get all of the kiddos to their new classes without to many tears but I was exhausted. I just wanted to go in set down relax for a few minutes without children hanging off me.  Not the best reason to go to church I know.  But as I sat there and listened to our pastor talk about how John was questioned  by the priests  as to “Who he was”  I could not help but question myself.  Who am I? John knew he was not Jesus and was quick to tell them he was not. He also told them he was not Elijah nor was he the prophet.  (John 1 19-28) It would have been easy for him to take credit and say Yes I am, but he did not. Instead he stayed humbled and followed the path God intended for him. 

So who am I? Where do I fit in to His master plan?  

I don’t know the whole answer, I may never know.  But I do know He placed me here in this moment for a reason. He made a way for me to be a mother to seven amazing children all uniquely made in His image. He blessed me with a truly wonderful husband. He knows my every flaw and still He loves me anyway.  I may second guess myself from time to time but God believes in me with all He has.  How truly awesome is that?

 I don’t always have the picture perfect family were everyone gets along and everyone is happy to see each other.  No in fact most days we have at least one mad at someone because they “looked at them weird.”  And I may get embarrassed and a little upset while trying to talk to someone on the parking lot and my kids are screaming in the car like crazy animals (side note there was a hornet in the van which set the screaming in motion, my husband was able to remove it but the screaming continued) I may feel unqualified to parent when I see others with their children so well behaved in the store while mine are…..well not behaving as  I wish.  It’s all okay because He is the Great I AM. 
For when I feel weak – He is strong

When I am tired – He gives me rest

When I am unlovable- He loves me anyway 

When I hurt- He is my comforter 

When I am lost – He will find me

When I simply can not go on- He will carry me

When I question why- He answers 

I am where I am suppose to be. God has placed us all here not to just wake up, go to work, pay bills, and sleep. He placed us here to love each other and to support each other.  And when life seems to be just to different for us to do alone He wants us to know He is there for us.  We must all be like John and find our place in History.  

I am so thankful we didn’t let the devil win yesterday morning. I am thankful we made it to church and heard the message. I am thankful the kids enjoyed their new classes and want to go back. I am thankful I could sing His praises yesterday, today and forever more.  Yehweh Yehweh 

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