Lost Tooth

Losing baby teeth is part of growing up. I remember one time when my oldest son was around five. He had lost a tooth at my then mother in laws house and the tooth fairy traded him ten dollars for his tiny tooth. To my son (and me) that was a lot of cash for one tooth. A few days later he jumped off the couch and hit the table, just as he had planned, and out come another tooth. He was so proud as he showed me the bloody tooth and his lip. Unfortunately for him at our house the tooth fairy did not pay out as much. That stunt was never tried again. Thank goodness.

Awe memories.

Last night was yet another big tooth event in our home. Wild man does not tell us a lot of things when it comes to physical pain. So when he told me his tooth was squeaking, I had to check. Sure enough it was moving. He has lost teeth before, most of them we only notice once we see the empty space in his mouth. One he lost at school in an apple slice, he was excited to bring that one home apple and all. So for him to notice his tooth was moving is a huge win for him (us). All day his tongue wiggled that tooth back and forth. I offered to help but he insisted he could do it on his own. Independence something I have prayed for him to have. And then it happened. That tiny little grinded down tooth popped out.

His sister told him to do’s and don’ts of leaving a tooth for the tooth fairy, at the age of eight she is a pro. He wanted to make sure we placed it under his pillow, so we did. He made sure it was well protected. His plane, his bumble, and his body sock all placed in the way he wanted. He paced back and forth for over an hour making sure everything was just right.

He went to sleep with ease (which is not something he does) all in the hopes of getting treasure from the tooth fairy. When the first signs of the early morning light come through the bedroom window he was up. The tooth fairy had given him some money and even left his tooth as Wild Man had requested. He wanted to add it to his treasure box, how could the tooth fairy say no?

Such a normal everyday event, and yet I have cried my eyes out.

There are so many days I would give anything to get inside his mind and see the world he sees. Today our worlds come together over a small tooth.

This evening we continued the celebration with a movie night. He is starting to interact more with our other boys, where as he use to only parallel play along side them. As we watched Frozen (thank you Freeform) the boys asked if he wanted to have a sleepover in their room. I carried in his mattress while the boys brought his bag of cars, his rocket, his treasure box, and the all important blue light lamp. They wanted him to feel safe and made sure he had all of his favorite things.

Again I’m in tears.

As they get older they are bonding, as well as siblings can when autism is a factor. Tonight was a good night.

I am thankful for lost teeth and sleepovers. What are you thankful for this evening?

Hard Days

Have you ever wanted to run to the top of a mountain and just scream? I’m talking the type of scream that has hot tears running down your face, your whole body shakes, sweat pouring off of you and it solves absolutely nothing but you continue to scream anyway type of scream because no one can hear you. The type of scream that makes you feel better for just a split second but you know the pain that will follow in your throat for days to come. The type of scream you scream where no one else can hear your sadness, your isolation, your frustration, your pain. The life as an autism mom has these days, today in fact was one of those days.

I’m getting ahead of myself, let’s back up.

Like most families we have our days. We have days that are good, days that are okay, a few great days that give us the strength to continue forward and then those days were I feel like a complete failure. Meltdown after meltdown. Nothing. Going. Right. Days. These days drain everything ounce out of me. This day started around 4am this morning.

I knew when we went to bed it was going to be a long night. I saw the signs.

I had to tell him daddy was on call this weekend so he would not be in to see them. Big Sis had told him she had plans to go to a football game so he would not see her for a few hours. My other little loves were excited for the weekend and the noise level in the house showed it. He paced the floors in a circle around the couch. He held his stomach as he does when he “needs to go” I check his calendar, it’s been four days, he will probably go this evening. I make a mental note to take extra pull-ups and wipes to bed with me. By nine all the kids are sleeping, even him, but he is not resting. He tosses and turns in his bed. I hear him groan as he sleeps and I know his belly hurts. I drift in and out of sleep because I know he will need me soon. Around midnight he yells and I run to his aid. He can’t sleep know, he is wide awake, I make his pullout bed in my room so he can feel safe. He finally drifts off to sleep around two and I can finally close my eyes.

Then it happens. 4am comes with screams of complete terror. I jump up but can’t see a thing. Complete. Darkness. I am frozen for a split second until my ears lock on his scream. Power outage. I’m not prepared. All I have is the flashlight on my phone. Why oh why did I not unpack the candles? He makes his way to me he is now wide awake once more no sleep for us now. With every noise, every sound he hears and his mind wonders. By five two more of my little loves join us in my dark bedroom. They are also scared. I must be brave even though my heart is racing. Finally around seven the sun begins to break through the clouds. The scary night is over, a new day can begin.

But his routine has been changed. Nothing will be easy today. I try my best to make it work but it does not. Daddy is suppose to be here today. He is not and our wild man does not understand. Things spiral. Lack of sleep is not helping the situation. We load up and drive to my parents. He is happy to see them, but notes that he sees them on Sundays not Saturdays. He writes me a note letting me know he loves me, hard days are less hard when he gives me notes like these. A few hours at their house was helpful, maybe the rest of the day will be better. Cue meltdown number three.

Car ride home. Sister singing. Brothers laughing. Sister yelling for brothers to stop. Noise all around. I ask them to calm down, I fear it’s to late. To much for him to handle. So it starts.

Hitting. Kicking. Screaming. His body takes over. I get us home. I try to hold him, try to contain the storm within him, but he is not a small two year old anymore he is a 65 pound seven year old that is stronger than an ox. I really wish my husband were here. A few hours, yes hours, pass and the storm is once again my sweet loveable little man. He says things like, I sorry momma, I will not bite myself again momma. Momma today a bad day. He cries. I cry. I pray for rest tonight but can see it will be another long night. Days like these are hard.

I try to be honest about how life is. I try to let those that want to know how things are going, how things are actually going. But know one really understands what it’s like to have a child with autism unless they have a child with autism. I try to make things as normal as possible around here, whatever that is, but there are days I feel so isolated. There are days I feel like all I do is scream both figuratively and literally. There are days I wish I could get in his mind and figure out the why’s and why not’s. People say we are lucky because he can talk now, and we are blessed he has found his voice. But that does not make his autism less hard. It’s hard. So hard.

I look over at him. He is finally fast asleep in his pullout bed right beside my bed. He is at peace. He feels safe and that’s what’s most important to me at this point. I set here on the top of my mountain screaming inside knowing no one hears me. I pull on my invisible super mom cape so that people see what they want to see, so they don’t feel obligated to pretend to understand or worse give me advice on what I should do when he acts out. Tonight as I look at him and know we made it through a hard day we pray for strength to get through future hard days. We pray for a better days. An easier day. I pray I can be the mom he needs me to be. And I give God thanks for making me his mom. God knew we needed each other on days like this. Tomorrow is a new day.

What’s Best for Him

Our school year is well underway, our little loves are adjusting to their new teachers, bus drivers, and schedules….well most of them. Our littlest guy was not adapting well at all. While his brothers and sister were excited to see what their new school’s had to offer them he was terrified. Completely. Terrified. This year he would be in class without his brother. This year he had a male teacher. This year he would start without knowing anyone. Kindergarten can be a scary place. His preschool had some worries about him starting kindergarten. Academically he was ready. He knows all of his colors, he can count to 100, he knows his shapes, and he can write all the letters not the alphabet. He can even correctly spell his full name. He can even sign the alphabet (forward and backward) I think he is pretty smart for a new five year old. But kindergarten is more than A B C’s and 1 2 3’s. Socially he is not ready. We tried the kindergarten class, but within a few days we knew it was not going to work. His teacher said he would stay to himself, he would not answer (or even acknowledge) anyone that asked him a question. He basically shutdown on us all.

He did not want to get up in the mornings. He cried as we went to the bus. He would not talk about anything that happened during his day. He didn’t want to go to bed at night because he knew he had to get up and go to school the next morning. Our happy, go lucky, always making a joke kid was miserable. My momma heart broke for him. When the school called for our meeting I knew something had to change.

As I sat in a room with teachers and staff that barely knew my son, I questioned if we/I was doing the right thing for him. If I stuck to the plan with him staying in kindergarten he could come out of his shell in a few weeks/months and everything could be okay. He could also be completely miserable and in the end fail kindergarten and have to repeat it again next year. Or we could place him back in preschool and help him build on his social skills and possibly transition him into the kindergarten class a few days towards the end of the year and that way he would be ready for kindergarten next year. The choice was clear. He needed another year of preschool. But how would he adjust to yet another change this year?

Part of me wants both of my five year olds in kindergarten together. But I want what’s best for him, not what I pictured life would be. He needs this. His teacher knew I was worried about the decision we made, so she sent me a few photos through this first day. I can’t tell you how much those photos meant to me. And when he got off the bus from his “second first day” the smile on his face said it all. He was happy, so very happy.

I hope as the years go by he understands why he and his brother are not in the same grade. I hope he understands we did what we thought was best for him. I hope he understands that every decision we make is in hopes of giving him a better life and giving him the best opportunity we can. But those are all questions for a later day. For now I will focus on the smile on his cute little face and know that he is happy and feels comfortable in his new class. Here’s to a great preschool year!!

Shorts made Me Cry Today

This make photo may look like a typical second grader heading off to another day at school. However, to those that know our little man this, is so much more.

When he was two and a half our little guy stopped eating meat. A few years ago he went from wearing shorts and T-shirts to long sleeve flannel. It could be 90 degrees outside and he would wear his magic pajamas outside. If autism as taught us anything it’s to be patient and to except what we don’t understand.

His magic pajamas are his safe place. He knows when he is home (or traveling in the car) he can be himself and no one will judge. We have received several rude comments and have seen the stares as we travelled when we stop at rest areas or restaurants and my adorable son would climb out of the van in all of his flannel. I can handle those that judge, my top priority is his happiness and wellbeing. Yes I worried about him become to hot, I’m his mom it’s my job. Imagine my surprise when he decided today he wanted to wear shorts to school.

As he was eating breakfast this morning he looked over at the TV. The weather man was talking about the heatwave and mentioned that today’s high would be 95. As he took a bite of his Cheerios he looked up at me and said, “momma that Man says it’s hot. Me need to wear short pants today.” I looked at him and said it was going to be very hot and that I thought shorts would be a great idea. It’s been three years since he wore shorts. Three. Years. Did I even have shorts that would fit him? Could his swimming trucks pass as shorts? No then he would think he was going swimming, can’t do that.

I ran through the house frantically looking for a pair of shorts that may fit before he changed his mind. With today’s high, shorts would be much more comfortable than his jeans. After trying on three pair we found a pair that he said would work, blue light weight basketball shorts. (Perfect, mental note to self go buy more shorts like this in a variety of colors). He even wore a T-shirt instead of his button up dress shirt. Today was a huge day of change for him. Today I will not worry if he is getting to hot on the playground. He prefers to wear button down dress shirts with jeans to school. He calls this his school gear.

I am sure when he returns homes this afternoon he will come in and the shorts will come off and his magic pajamas will go on. And that’s perfectly fine. We have learned to celebrate the small victories. And today was a victory. The thought that he understood it was going to be really hot today and wanted to wear shorts is huge. Who knew a simple pair a shorts could make me so happy. Here’s to small victories, Momma tears, and blue shorts.

Autism Isolation

As autism awareness month comes to an end, I can’t help but look at our family life. Autism is not something we think about just in the month of April, we live it every day.

The wind is a little chilly but the sun is shining bright. Our little loves were eager to get outside and enjoy all our backyard had to offer. We don’t go to public parks much especially on pretty days. They are normally to crowded for our little guy. The noise can be to much for him and trying to keep him safe while allowing the others to play freely is stressful. The stares and the whispers from the other patrons should not get to me, but it does. So our backyard is our sanctuary. Here he is safe and here our other four can run and play and I don’t have to worry.

Four are dressed in their play clothes while one is in his standard pajamas. It maybe 70 degrees outside but you will always find him in his magic long sleeved flannel pajamas. They are his safety net at home. While our other little loves run and play tag he sits on the sidewalk lining up his cars. He seldom looks up, but when he does it’s for a quick Look Momma look what I did. He loves his cars. He spends hours lining and relining them up. He is perfectly happy doing so.

Today, while we played ball with our youngest daughter, JR came over to watch. We tossed the ball back and worth to our two year old and she giggled as it bounced down the hill. Out of nowhere JR decided to engage and went after the ball. He laughed as he throw it to his dad and giggled as he tried to kick it. For the next ten minutes he played with us and it was wonderful. It was perfect. Then just as quickly as he had joined in he stopped and returned to his cars.

Autism is so isolating at times. I truly believe he wants to be part of everything, he simply can’t. We have had people tell us, Just take him out or Just make him go he will get over it? As if they think we don’t want to go out and do things. But the truth is his happiness and wellbeing are important to us. We know what he can handle and what he can’t. Days that we can make it to church as a family, or trips to the grocery store without a meltdown are considered victories in our house.

If the outside world just took a few minutes to get to know our little guy they would see how truly wonderful he is. He is the sweetest most loving little guy you could ever meet. He is the best big brother to his two year old sister and he loves to cuddle babies. At his school he is known as the hugger because as everyone comes through the doors he is there to welcome them with one of his giant bear hugs. He is not less because of autism he is so much more.

As a mom I love days where we have moments like today. To hear him laugh and to see him run and interact with his siblings is something I will never take for granted. Today was a good day and for that I am truly thankful.

JRs superpower is autism, what’s yours?

Side note:

Thanks to everyone who has bought my book Beautiful Chaos Our Story about Foster Care, Adoption, Faith and Love. If you haven’t done so yet you can go over to the new website at http://www.beautifulchaosmomma.com and pick up a copy. My prayer is that our story inspires others to become foster/ foster to adopt parents.

Beautiful Chaos is now AVAILABLE!!!

Hello everyone,

For those of you who have been following the release of my first book Beautiful Chaos Our Story about Foster Care, Adoption, Faith and Love, the wait is over!! It is now available.

I want to thank all of you who have supported this project in some way. For those that helped me fund the project THANK YOU!! For those that have prayed for the book and for me Thank you!! For those that gave me the encouragement to get it started and then to get it completed Thank you!! I am truly humbled by what is taking place.

Thank you to my beautiful family for allowing me to share a glimpse of our life with the world. Thank you to my wonderful husband who not only lives this crazy life with me but also has had to listen to me over the last few months give him play by play details as our story became a book reality. Mostly I want to thank God for allowing us to be a small part in His beautiful masterpiece. He has allowed us to be part of some many lives on this foster care adventure. He has been my comfort when a child is placed back with a birth parent or relative, He has been my guide when I did not know what to do, He has been my protector when situations have become unsafe, but above all He has been my friend that has walked with me every step of the way. To You oh Lord, be ALL the glory.

This book is for you!

If you have ever thought about becoming a foster parent or have ever wondered what it takes to foster a child, if you have ever thought about adopting, or if you have ever questioned your plan in Gods story I encourage you to read our story. My hope is that it inspires at least one person/one family to open their heart to the idea of becoming foster parents. If one child gains a safe place to lay his or her head at night then everything struggle and every worry in making this book a reality was worth it. It’s all about the kids. Always

You can find the book at the following websites:

WestBowPress.com

Barnes & Noble

Amazon

Check it out and let me know what you think

From our beautiful chaos to yours, may you find a way to make your mark In this great big world. One act of kindness at a time

Today was a Good Day

What a great day, just what we needed. Today was well overdue so I am thankful.  The last few months have been brutal.  This was the first weekend in over six weeks that everyone in the house was feeling well.  The month of February alone our little loves had four double ear infections, three cases of the stomach bug, two upper respiratory infections, four fevers, one cutting teeth, and then my husband had the “man cold”.  We all know that last one was the hardest on all of us, right ladies?  I don’t know how we didn’t catch the flu, but praise God it spared us.

On top of all of that we received test results back from the geneticist for Alex.  It has been confirmed he has Alcohol Related Neurodevelopmental Disorder (ARND).  Eli with his chronic stomach issues was given the diagnosis of Underdeveloped Bowel Syndrome. And I was told I would have to have back surgery again.  When it rains it pours.

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Today it was time to get out of the house and forget about all the bad stuff and just have fun.

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I stumbled across a local autism group called Autism Site Knoxville (ASK).  They were hosting their fourth annual Day at the aquarium today.  When I saw the invite last week I thought it would be the perfect way for us to spend a Saturday morning. And how could we pass up the low cost of only 10 dollars per person?  As the day came closer however all the normal mom worries started coming to the surface.  We had not even made it to church in two months how in the world would the kids do at the aquarium? Would it be to crowed for JR?  How would he do with the noise? What is he had a meltdown? How would my husband and I handle it with all the other little loves in tow?  This would be the first big outing that we had done in months and we would be doing it without the help of our older children or grandparents.  Not going to lie I was a little overwhelmed.  But when your four hours away from family you got to go out on your own at some point. With our family its just a much larger challenge than most.

So this morning we loaded four very excited and two very sleepy children into our 12 passenger van at the wee hour of 6am so we could drive a little over two hours to be there when the aquarium at 8:00.  The event ran from 730 to 1030 but of course we were free to stay longer.  I am so glad we went.  The staff was super sweet and handed out goldfish, gummies, and water to the kids as we came in.  Being that early in the morning the kids were able to walk around and enjoy all the different tanks without being ran over by other people.

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The event organizers had different sensory stations set up throughout the aquarium so if JR or even our other kids wanted to take a break they could.  The lights were softened and the background music was turned off. Everyone there got it.  Everyone there was living in the world of autism.  There were no nasty remarks about behaviors, or looks when he made his unique noises, and no one stared at us.  Okay some people did look at us but it was not because of JR it was because of the size of our crew lol.  He rode in his stroller for a while then walked with me for a while. He pointed out the scary sharks and the huge sea turtles.  And he made it known he did not like the seahorses, after all real horses don’t look like that.

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He made friends with other people waiting outside and made sure to tell all the moms we passed just how cute their babies were.  And no one cared that he was talking to them or touching them.  Most told him thank you or even told him he was a cutie as well, to which he would just laugh and smile.  He really enjoyed himself. Our other kids had a great time as well.  We don’t get to do things like this often unless we have our backup team to help us in case he has a major meltdown or takes off running. He has no safety concerns at all.  So thank you ASK for making today possible.  Thank you for hosting events like this so that children and adults with autism can go and do everyday things.  Thank you for opening it up to all of our children so that we could attend as a family. Thank you for a day we will not soon forget. Thank you for giving us a day were all of our kids could just be kids. Thank you for helping this mom see her son really enjoy himself today.  Today was a good day and we so needed a good day.

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